A sudden diagnosis of myositis left me unable to walk, lift my arms, or even eat and drink, safely!

And facing ten weeks in hospital that changed everything in my life!

In this honest and deeply personal episode, I share the reality (to me) behind the word “hospital”: the loss of independence, the unexpected moments of hope, and the determination it took to walk again out of rehab just four weeks after getting there.

This is a chapter about vulnerability, resilience, and the people who helped me rebuild when life stopped me in my tracks.

Welcome to the extra episode of Stubbornly Vertical: “A thought… You may agree or not, but I will share it anyway!”.

A short and honest reflection, on how the disease may shape our daily routines, challenge our strength, and test our patience, but it does not own our identity, our ambitions, or our sense of purpose. 

So here is a thought… you may agree or not, but I will share it anyway!

Before November 2025, I had never heard the word myositis. Like most people, I assumed that if something serious ever happened to my health, there would probably be warning signs, risk factors, or at least some kind of explanation.

There weren’t.

In this episode, I want to introduce you to myositis — what it is, how it affects the body, and how my own journey with it began. I’ll also share how quickly things progressed, how unexpected the diagnosis was, and why awareness of rare conditions like this really matters.

A short intro on the raison d'être for my podcast!

It is a bumpy, sometimes uncomfortable, (and a bit gross ) story, but I hope it will inspire you, make you laugh, and give you an insight into life changing experiences and how they can positively shape our lives, even when all hope seems lost.