In this episode you will here what PCOS is, Symptoms, and if it is linked to SLE and if it is considered an autoimmune disorder.  Also you will hear information Study Offers New Data on COVID-19 and Lupus and Cautions Against Treatment Discontinuation.

Resource

Hindawi Journal (22, January 2021) Polycystic Ovary Syndrome May Be an Autoimmune Disorder. Retrieved from: hindawi.com/journals/

National Library of Medicine (22, January 2021) Polycystic Ovary Syndrome May Be an Autoimmune Disorder. Retrieved from:  pubmed.ncbi.nlm.nih.gov

Lupus Foundation of America (22, January 2021) Study Offers New Data on COVID-19 and Lupus and Cautions Against Treatment Discontinuation. Retrieved from: https://www.lupus.org

Sponsors

Goli Gummy-Promo Link: https://go.goli.com/suelynne1

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TubBuddy-https://www.tubebuddy.com/mystorylivingwithlupuspod

#pcos #autoimmunedisorder #sle #mystorylivingwithlupuspodcast

In episode 171 I discuss the benefits of physical activity on our mental health.  You will hear about the benefits of living an active life, and what research states about this.  You will also hear about Trends in Long-Term Lupus Outcomes are we really ahead or lacking with the outcomes? Does there exists a problem finding quality care?

Resource

MedPage Today (13,  January 2021) For Lupus Mental Health, Physical Activity Matters— Sedentary patients had more than threefold risk of depression. Retrieved from:  https://medpagetoday.com/rheumatology/lupus/90651

Rheumatology Network (13, January 2021) Trends in Long-Term Lupus Outcomes. Retrieved from: https: www.rheumatologynetwork.com

#physicalactivity #mystorylivingwithlupuspodcast #mentalhealth

In this episode you hear whether it is true that once stopping hydroxychloroquine lupus flares increase or not.  You will also find out if stress really affects kidney function in African Americans. Also you will be given techniques that you can use to elevate stress.

Resources

MedpageToday (11, January 2021) Who flares when sle patients stop hydroxychloroquine? Retrieved from: https://medpagetoday.com

MedpageToday (11, January 2021) Goal striving stress tied to rapidly worsening kidney function in African Americans. Retrieved from: https://medpagetoday.com.

#lupusflares #mystorylivingwithlupuspodcast #goalstrivingstress

In this episode you will hear some of the concerns that some doctors have about patient's reading their clinical notes.  Is there really a concern? Does it place more liability concerns for the doctor's? Does this cause more malpractice concerns?  Do patient's really understand what they are reading? Can patients misinterpret what they are reading? 

Also you will hear about family doctor's license suspended after refusal to wear mask, and what he stated to people at a political rally.

Resources

Medscape (05, January 2021) Doctor's worry about patients reading their clinical notes. Retrieved from: https://www.medscape.com

Medscape (05, January 2021 Family doctor's license suspended after refusal to wear mask. Retrieved from: https://www.medscape.com

Sponsors

Goli Gummy - Promo Link: https://go.goli.com/suelynne1

VitalizeHair - https://thinedges.com/?ref=Y5QexsqQ6LzT

TubBuddy - https://www.tubebuddy.com/mystorylivingwithlupuspod

In this episode I explain what Health Literacy is and the importance of it.  I provide tips and strategies not only for the healthcare consumer but steps that healthcare facilities can take to make it better for the patient and the public.  Also you will find out why this episode is coming out on today.

Resource

Rasmussen College (04, January 2020) Health Literacy: What Is It and Why Is It Important. Retrieved from: rasmussen.edu

Sponsors

Goli Gummy - Promo Link: https://go.goli.com/suelynne1  Promo Code: suelynne1

VitalizeHair - https://thinedges.com/?ref=Y5QexsqQ6LzT

Tubbuddy

https://www.tubebuddy.com/mystorylivingwithlupuspod

#lupus #healthliteracy #mystorylivingwithlupuspodcast

In this episode you'll here the latest research Breakthrough cellular genomics technology has allowed researchers to reveal genetic mutations causing rogue behavior in the cells that cause autoimmune disease. You will also hear about a California Physician who is being indicted for selling Hydroxychloroquine as a COVI-19 cure and stated that was following the lead of Trump.

Resources

Science Daily ( 21, December 2020) Rogue cells at root of autoimmune disease. Retrieved from: https://www.sciencedaily.com/releases/2020/20/200213135800.htm

Medscape (21, December 2020) Physician Indicted on Charges of Selling Hydroxychloroquine as COVID-19 Cure. Retrieved from:  https://www.medscape.com/viewarticle/942941?src=wnl_edit_tpal&uac=310597AT&implD=27479

Sponsors

GoliGummy - Promo Code: suelynne1

Promo Link: https://go.goli.com/suelynne1

VitalizeHair - https://thinedges.com/?ref=Y5QexsqQ6LzT

TubBuddy - https://www.tubebuddy.com/mystorylivingwithlupuspod

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In this episode I talk about is there a coexistence of crohn's disease and systemic lupus.  Also in this episode you will hear the issues that I have been having.

Resources

Crohn's and Colitis (19, December 2020) WHAT ARE SYMPTOMS OF CROHN’S DISEASE? Retrieved from: Crohn's Disease Symptoms And Types And How They May Affect You (crohnsandcolitis.com)

Oxford Journal of Crohn's and Colitis (19, December 2020) Inflammatory bowel disease and lupus: A systematic review of the literature. Retrieved from: Inflammatory bowel disease and lupus: A systematic review of the literature | Journal of Crohn's and Colitis | Oxford Academic (oup.com)

European Journal Of Gastroenterology and Hepatology (19, December 2020) Coexistence of Crohn’s disease and systemic lupus erythematosus: a case report and literature review. Retrieved from:  https://journals.lww.com/eurojgh

Sponsor

Goli Gummy 

Promo Code: suelynne1

Promo Link: https://go.goli.com/suelynne1

VitalizeHair

https://thinedges.com/?ref=Y5QexsqQ6LzT

Tubbuddy

https://www.tubebuddy.com/mystorylivingwithlupuspod

#lupus #crohnsdisease #connection #mystorylivingwithlupuspodcast

In this episode you will hear the latest discoveries that advanced lupus research.  Also you will hear about the most common blood disorders in lupus patients.

Resources

HSS (15, December 2020) Four Discoveries from 2019 That Advanced Lupus Research By Dr. Mary K. Crow  and Dr. Jane Salmon. Retrieved from: Four Discoveries from 2019 That Advanced Lupus Research (hss.edu)

LupusNews Today (14, December 2020) Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds. Retrieved from: Anemia and Low Lymphocyte Numbers Are Most Common Blood Disorders in Lupus Patients, Study Finds (https_lupusnewstoday.com)

LupusCorner (14, December 2020) Red blood cells transport oxygen to cells throughout the body. People with lupus may experience a reduction in red blood cells known as inflammation-related anemia, which can cause a range of symptoms. 

Sponsors

Goli Gummy - Promo Code: suelynne1

Promo Link: https://go.goli.com/suelynne1

VitalizeHair - https://thinedges.com/?ref=Y5QexsqQ6LzT

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#lupus #mystorylivingwithlupuspodcast #lupusblooddisorders

In this episode you will hear about what the Real-World Study Affirms about the IV Treatment use of Benlysta for Lupus.  Also did you know that Age at start of menstruation and breastfeeding linked to lupus risk in black women?

Resources

Springer (12, December 2020) Original Research

Rheumatology and Therapy volume 7, pages949–965(2020)

Lupus Foundation Of America (12, December 2020) Age at Start of Menstruation and Breastfeeding Duration Linked to Lupus Risk in Black Women. Retrieved from: https://www.lupus.org/news/age-at-start-of-menstruation-and-breastfeeding-duration-linked-to-lu

Sponsors 

 Goli Gummy - Promo Code: suelynne1

Promo Link: https://go.goli.com/suelynne1

VitalizeHair-https://thinedges.com/?ref=Y5QexsqQ6LzT

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In this episode you will hear about women who live in Africa in urban areas are at higher risk for chronic diseases than those women who live in rural areas.  Also you will hear about how race is playing once again in kidney disease patients.

Resources

MedPage Today (02, December 2020) Leave Race Out of Kidney Function Estimates? — Removing race modifier would yield more CKD diagnoses among Black patients. Retrieved from:  https://www.medpagetoday.com/nephrology/generalnephrology/89962?xid=nl_covidupdate_2020-

NewsMedicalLifeSciences (27,  November 2020) Urban women have higher risk of chronic diseases than rural dwellers. Retrieved from: news-medical.net/amp

Sponsors

Goli Gummy-Promo Code: suelynne1

Promo Link: https://go.goli.com/suelynne1

VitalizeHair-https://thinedges.com/?ref=Y5QexsqQ6LzT

Tubbuddy-https://www.tubebuddy.com/mystorylivingwithlupuspod Affiliate Code