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Join us on this week's episode on Take a Pain Check as Dawn Richards, diagnosed with rheumatoid arthritis, shares her incredible journey from diagnosis to clinical remission. She opens up about changing rheumatologists, managing methotrexate side effects, and the transformative impact of exercise. She discusses her life both as a researcher and being patient partner in research. Finally, she discusses her involvement with the Canadian Arthritis Network, CIHR IMHA and the Canadian Arthritis Patient Alliance.
In this episode, Natasha talks to Kohle Merry about his journey with osteoarthritis. From undergoing joint injections to a hip replacement at just 29, Kohle's resilience is evident. As an engineering grad with aspirations for physiotherapy school, his surgical timeline redirected him to a PhD candidate in rehab science. He discusses the hurdles younger adults encounter in a rehab as it is setup predominantly for seniors and delves into the emotional struggles of persistent pain. Drawing from his experiences as a patient, tech enthusiast, and researcher, Kohle talks about his drive and how he wants to be part of the intersection between healthcare, patient partner lens and technology. A marathoner at heart, Kohle shares how he modified his active regimen so that he could keep running. Dive into this story of perseverance, from marathons to medical battles, and learn about how to implement self-advocacy in health.
In this week's episode, we dive deep into the world of occupational therapy with Lindsay DeLong. Lindsay's journey spans from her foundational education to her innovative initiatives in the OT profession, particularly her unique focus on medical equipment. Having worked in a rehabilitation hospital, she specialized in inpatient brain injury rehabilitation, offering a wealth of insights into the day-to-day life and challenges of an OT. Beyond her clinical work, Lindsay founded EquipMeOT, a pioneering business dedicated to providing tailored medical equipment solutions. As we explore the products that enhance accessibility in various sections of a home, Lindsay also sheds light on the digital side of her mission. With a strong presence on platforms like YouTube, where she recently showcased an electric recliner video, and Instagram, she discusses the nuances of staying updated with trends, the hurdles of online engagement, and the power of social media in broadening her impact. She also delves into specific tools like Dycem, cylindrical forms, Y-shaped pencil grips, and more invaluable tips for adaptive living. For aspiring OTs, patients, caregivers or those curious about balancing work and personal life, Lindsay's experiences and advice promise a unique blend of inspiration and enlightenment.
Join us on this week's episode featuring Navya Juneja, a university student and a patient partner living with Juvenile Idiopathic Arthritis. In this week's discussion, Navya candidly shares her journey, from the early symptoms to her recent diagnosis and the challenges of finding the right medications.
In this week's episode of Take a Pain Check, prepare to be inspired as host Natasha welcomes the Sharona Franklin, an artist from Rural British Columbia. Sharona's story, despite grappling with multiple diagnoses, such as SJIA, AS, IBD, Pericarditis, and Vasculitis, transforms into a remarkable journey of unwavering resilience and strength. Natasha and Sharona dive deep into the profound impact of childhood struggles, the intricate complexities of the youth care system, the unique experiences of rural living, the challenges of dropping out of school, mental health battles, and navigating a unique family dynamic as one of eight siblings.
Join us on this week's episode of Take a Pain Check where our host, Natasha, delves into the world of pediatric oral and maxillofacial surgery with our esteemed guest, Dr. Cory Resnick. A science enthusiast since childhood, Dr. Resnick shares his journey into dentistry and his love for academic surgery. He discusses the challenges of maintaining work-life balance while running a private practice in New York and enlightens us about the inspiring environment created by working with trainee surgeons. This episode explores an often overlooked aspect of rheumatology - TMJ arthritis. Dr. Resnick sheds light on its recent recognition, the difficulties in early detection, and its prevalence among JIA patients. He further delves into the complexities of treating TMJ arthritis, the concerns related to using steroids in growing jaw joints, and the possibilities of joint reconstruction. Learn about the subtle signs that can hint at TMJ issues in children and the need for increased awareness and education about this 'forgotten joint'. We wrap up with a hopeful note on the formation of the TMJaw Research Consortium - an international group that it working towards better understanding and treatment of TMJ arthritis. Tune in as we navigate the fascinating crossroads of rheumatology and oral and maxillofacial surgery, uncovering profound insights and innovative perspectives from the field.
On this week's episode of Take a Pain Check with your host Natasha, we delve into the world of Nikki Bhatti. Nikki bravely shares her personal journey living with rheumatoid arthritis - from the first instances of joint pain in her fingers and toes, to the evolution of her medication journey with her current medication called Actemra. Listen in as she discusses the social implications of managing arthritis, and dives deep into what it is like being a South Asian woman managing cultural expectations while grappling with her own health. Natasha and Nikki dive into the discussion on lifestyle changes. Nikki discusses her experience with gym visits and swimming, along with the adaptations she's had to make to her work schedule due to morning stiffness and flare-ups. Hear about her experiences with arthritic nodule surgery and how she navigates disability within the workplace. Lastly, Nikki highlights her significant contributions to arthritis research as a part of the APAB board at Arthritis Research Canada, including the creation of an educational video. Natasha and Nikki end off the episode by discussing how they met each other!
Welcome to this week’s episode of Take a Pain Check with Natasha where we dive deep into the world of pain management. In this enlightening conversation, Nathan Augeard, a physiotherapist from Quebec and the visionary behind Physio Connection comes onto the podcast. Join us as we explore various facets of pain management and gain valuable insights from Nathan’s expertise. Nathan compares the healthcare systems of Scotland and Canada, shedding light on wait times and other crucial differences. This episode delves into the pain and pacing strategy, uncovering the interplay between stress and its impact on pain. He discusses his groundbreaking research and talks about how physiotherapy students across Canadian universities are taught pain management. As Natasha and Nathan explore the various aspects of pain management, Nathan highlights the importance of interpersonal competencies such as empathy, respect, and advocating for patients. Nathan sheds light on how this Canadian network connects individuals living with pain to qualified physiotherapists, with a particular focus on enhancing access in remote regions. Tune in to this episode and let’s embark on a journey to unlock the benefits of physiotherapy and conquer the challenges of pain together.
In honour of Canadian Mental Health Week and Lupus Awareness Month, tune in to this week’s episode as Krissy Stephenson, a successful business owner and chronic illness warrior, shares her journey of living with Rheumatoid Arthritis (RA) and Lupus. Krissy discusses the challenges of finding a good rheumatologist who understands the complexities of her conditions, her medication journey, and her experience with pregnancy and RA. Krissy also introduces us to the Spoon Theory, a powerful metaphor used by those with chronic illness to explain their limited energy each day. She talks about how she allocates responsibilities as a mother and entrepreneur and discusses her mental health journey with a therapist who also has Lupus. Join us as we explore Krissy’s inspiring story of perseverance, hope, and resilience, including her experience as a kindergarten teacher and her successful Direct Superior Hip Replacement surgery that changed her life. Don’t miss this week’s episode of Take a Pain Check.
Join host Natasha on this week's heartwarming episode of Take a Pain Check, as she sits down with Isabella, a remarkable 13-year-old girl who shares her inspiring journey with Lupus, Juvenile Idiopathic Arthritis, and Sjogren’s. Isabella's story began during the pandemic, when she experienced excruciating pain in her elbows at the tender age of 9. Initially hesitant to see a doctor, she attributed the pain to her extracurricular activities. However, after her hands turned purple due to Raynaud's, she finally sought medical help.
In this episode, Natasha and Isabella discuss the challenges faced by vulnerable patients and their families during the diagnosis process. Isabella shares how she was dismissed in the clinical setting, but her resilience and determination led her to make the necessary lifestyle changes. She talks about how she embarked on a medication journey which had its ups and down. She also discusses her journey with using mobility aids from a young age. Despite the obstacles, Isabella's unwavering spirit shines through, as she adapted to homeschooling with her sister and found support from her family and close friends.
Isabella also shares how she used music and humor to cope with her pain, despite the challenges with her hands when she played piano. Her advocacy journey and involvement with the Arthritis Society, including attending their yearly camp and kids' programs, are also discussed. Isabella's story of hope and perseverance will inspire you to live life to the fullest, even in the face of adversity. So, don't miss this episode of Take a Pain Check, and join Isabella on her journey towards living her best life!
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