Tales from the Heart

By Hypertrophic Cardiomyopathy Association / Lisa SalbergBusiness Health & Fitness Kids & Family Non-Profit

Tales from the Heart episodes

April 25, 2022 Episode 54: Communicating about Genetics/Family History in HCM with Dr. Steve Ommen
In this episode of "Tales from the Heart" host, Lisa Salberg, and her guest, Dr. Steve Ommen discuss Genetics/Family History in HCM and Communicating (genetics/FH) with family. The conversation includes a background on genetic mutations known to cause HCM (sarcomere, autosomal dominant, etc.). They also answer the questions: What do genetic tests for HCM mean? Who should be tested? What do genetic tests for HCM NOT mean? What does the genetic test involve?
59 min
April 24, 2022 Episode 53: The Role of Patient Advocacy for Uncommon Disorders with Dr.Turer
In this episode of Tales from the Heart, Lisa Salsberg and Dr. Turer discuss the role of patient advocacy for uncommon disorders
1 hr 9 min
March 28, 2022 Episode 52: Arrythmias / Life with Devices Part II with Dr. Harry Lever
In this episode of Tales from the Heart, host Lisa Salsberg and Dr. Harry Lever of Cleveland Clinic will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.
46 min
March 25, 2022 Episode 51: Special Edition: Student athlete screening as it relates to COVID and the COVID Vaccine.
In this special edition episode of Tales From the Heart, Lisa Salsberg and Dr. Matthew Martinez discuss student athlete screening as it relates to COVID and the COVID Vaccine. New Jersey Statue C.18A:40-41.6 clearly communicates the role of student-athlete preparticipation physical examinations. The Hypertrophic Cardiomyopathy Association, HCMA, and other organizations in NJ worked to pass updates to this legislation to ensure all student-athletes are protected from all forms of cardiac complications up to an including sudden cardiac arrest (hypertrophic cardiomyopathy (HCM) it the most common cause of SCA in the young athletes). The assessment of cardiac arrest risk is a complex area covered in the required state-based training module for all practitioners performing both sports physicals and ‘well-child” exams. It is important to ensure that school boards, school medical oversight providers, coaches, students, and parents are being informed by evidence-based scientifically proven theories and approaches to surveillance.
21 min
March 23, 2022 Episode 50: Discussing Timely HCM Topics with Dr. Alex de Feria
Dr. Alex De Feria joins host Lisa Salsberg for this episode of Tales from the Heart to discuss timely HCM topics. Being diagnosed with HCM, Dr. Feria brings a unique point of view on HCM from both a doctor's and patients perspective.
1 hr 1 min
March 16, 2022 Episode 49: Arrythmias / Life with Devices Part I with Dr. Martin Maron
The HCMA theme for the month of March is: "Arrythmias / Life with Devices". In this episode of Tales from the heart, host Lisa Salsberg and Dr. Maron will discuss risk assessment for sudden death, the effectiveness of therapies, assessment of non-life-threatening arrythmias (atrial fibrillations, PVC, SVT), decreasing stroke risk and more.
1 hr
March 08, 2022 Episode 48: Reflections of February 2022 HCM Awareness Month
In this episode of Tales from the Heart, host Lisa Salsberg reflects on HCM Heart Month this past February and why it was important.
37 min
February 28, 2022 Episode 47: Why is HCM Awareness so important? - with Dr. Steve Ommen of Mayo Clinic
In this episode of Tales from the Heart, host Lisa Salsberg wraps up Heart Month with a discussion about why HCM Awareness is so important with Dr. Steve Ommen of Mayo Clinic. Dr Steve Ommen leads the HCM program and talk about HCM history and a vision of the future in HCM.

ACC Survey Link: Survey link:
https://www.surveys.acc.org/se/0B87B7442D11B879
Imbria Trial: https://www.surveymonkey.com/r/hcmawareness
Celltrion: https://www.surveymonkey.com/r/hcmacelltrion
Please share this story to bring awareness to Heart Month! To learn more about hypertrophic cardiomyopathy (HCM), go to https://www.4hcm.org.#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM
1 hr
February 21, 2022 Episode 46: Discussing the HCM act with Billur Dowse: HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee
In this episode of Tales from the Heart, host Lisa Salsberg talks to Heart Billur Dowse, HCMA board member and Chair of the Elizabeth T. McNamee Legislative Advocacy Committee about the role of the committee and the HCM Act.
55 min
February 11, 2022 Episode 45: Heart Month Discussion: How do we find more HCM families? Why is it important? Why does expert care matter?-with Dr. Martin Maron
In this episode of Tales from the Heart, Lisa and Dr. Maron discuss delay to diagnosis, the right time to go to a COE, the importance of expert care, family screening, how to find HCM families, and more.
#4HCMAwareness #HCMStrong #HCMDay #4HCMWarriors #4HCM
42 min

About Tales from the Heart

From the publisher's feed

Tales from the Heart is a unique collection of educational, inspirational, and enlightening discussions with the stakeholders in the field of cardiology that come straight from the heart. The…