Tales from the Heart

In this episode of Tales from the Heart, author RA Anderson discusses her ties to the HCM community and her new book, Once Upon the Rhine - Cody the Cockatrice Series Book One. In which we meet Brody a young boy with a diagnosis of HCM.

The book is currently available through the HCMA: https://www.4hcm.org/store_product.asp?prodid=45

In part two of this special episode of Tales From the Heart, Lisa continues to talk about the new HCM guidelines released on 11/20/2020 with Dr. Harry Lever and Dr. Martin Maron. Q and A included.

In part one of this special episode of Tales From the Heart, Lisa talks with Dr. Harry Lever about the New HCM guidelines released on 11/20/2020.

In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. Lisa and Dr. Maron talk about the how HCM treatment has improved over the years and how it will evolve in the future.

In this episode, Lisa speaks with Robert Blum, President and CEO of Cytokinetics about future therapies for HCM and how industry and advocacy can work together to improve the lives of those with HCM.  The current status of Cytokinetics clinical trials in HCM is discussed. Q&A included.

In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic for a discussion about invasive therapy for obstruction.  We take a deep dive in to "when" to think about getting moving to myectomy or alcohol septal ablation. Dr. Lever also talks about the various treatments for obstruction. Q&A included.

In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imaging, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks about cardiac imaging in HCM, the history of HCM treatment and diagnosis,  the purpose and usefulness of an echocardiogram, contrast echocardiogram, normal values for wall thickness, obstruction, heart murmur, cardiac MRI, and more.

In this episode, Lisa talks with Dr. Harry Lever of Cleveland Clinic about safety concerns with some generic drugs. He advises listeners to stay informed about where medication by checking the label and asking your pharmacist.  There are documented cases of quality and purity problems coming from some overseas manufacturing plants.

In this episode of Tales from the Heart, Lisa talks to Dr. Martin Maron, the Director of the Hypertrophic Cardiomyopathy Center at Tufts Medical Center and Associate Professor at Tufts University School of Medicine. His specialties include cardiac imagining, hypertrophic cardiomyopathy, and cardiac magnetic resonance imaging. In this episode Dr. Maron talks with Lisa about why HCM is so poorly misunderstood. Lisa also reads questions from the live Facebook chat for Dr. Maron to answer.   This episode was record on 09/11/2020 and Lisa and Dr. Maron take a few minutes to pay tribute to the lives that were lost in the tragic terrorist attacks on the World Trade Center on 09/11/2001.

In this episode we welcome Julie,  HCMA’s new Volunteer Coordinator. Julie and Lisa talk about the programs they have planned for HCMA in the future. They have been friends since early childhood and reflect on the day Lisa was first diagnosed with Hypertrophic Cardiomyopathy.  Julie also talks about her son David who is on the Autism spectrum and her experience raising and taking care of him.  You will see why Julie is such a great fit for the HCMA community and how she is truly part of the bighearted family!