Talking Essential Tremor

Learn about Allevx, a neuromodulation wrist device for treating essential tremor, developed by Allevion Therapeutics. IETF Executive Director Patrick McCartney talks with Allevion's CEO and Chairman Shawn Moaddeb and Board Certified Neurologist Dr. Neal Hermanowicz.

The Readi-Steadi Anti-Tremor Orthotic Glove System was developed to help patients gain control of their hand tremors. Creator Krista Madere, licensed occupational therapist and certified hand therapist, shares her story about this medical device that, on average, provides a 50 percent reduction in tremor.

Jazz Pharmaceuticals is investigating a drug that acts to modulate the activity of t-type calcium channels associated with essential tremor. The investigational process and the work of Jazz is explained by staff members Michelle Baladi, senior director of global development, and Margaret Lee, head of neuroscience pharmacology.

Steadiwear has introduced a second version of its smart glove, the Steadi-Two, developed to stabilize hand tremors. CEO Mark Elias discusses upgrades made to this device and how it works, plus feedback the company has received from the essential tremor community.

Diagnosed with voice tremor and spasmodic dysphonia in 2019, singer-songwriter Terri Hendrix has come to realize that attitude is everything. She advises aspiring musicians with essential tremor to own the condition. Her management techniques include vocal exercises, medication and sometimes a shot of alcohol. Be sure to listen until the end because we share Terri's song "Love You Strong" off of her "Love You Strong" Album. The song talks about loving someone strong to help them get through difficult times.

Dr. Elan Louis, professor and chair of neurology at University of Texas Southwestern Medical Center in Dallas, discusses the COGNET Study. More than six years ago, this research was started, following hundreds of ET patients to study their cognitive function over a span of time.

Lord Julian Fellowes, English actor, novelist and screenwriter best known for creating the television series Downton Abbey, has lived with essential tremor for the past 10 years. He is credited for escalating awareness of ET by writing it into the Downton Abbey storyline. In this podcast, he talks about how having ET changed his career.

If you're considering Deep Brain Stimulation therapy to help manage your essential tremor, what questions should you be asking? Learn this and more from this conversation with Dr. Binith Cheeran, movement disorders specialist and medical director for neurological therapies at Abbott Labs.

Did you know that brain disease affects more people than heart disease and cancer combined? Katie Sale, executive director of the American Brain Coalition, talks about the mission and advocacy work of the ABC, which serves as an umbrella organization for more than 100 brain-related professional organizations and patient advocacy groups, including the IETF.