Talking Head Pain

In this episode of Talking Head Pain, Joe is joined by Elizabeth Leroux, MD, a headache specialist, former president of the Canadian Headache Society, and founder of Migraine Canada.

Join Joe and Dr. Leroux as they talk about starting migraine associations in Canada, the obstacles providers have when getting patients their treatments, and the important work being done by Migraine Canada.

Among the highlights in this episode:

00:55- Joe kicks off the episode by asking Dr. Leroux about her own experience with migraine

03:16- Dr. Leroux tells Joe about vestibular migraine

03:51- Dr. Leroux tells why she pursued a career in neurology and what drew her into helping be a leader in Canadian migraine advocacy

06:41- Joe asks Dr. Leroux what challenges patients face when trying to access treatments, and how much time is spent advocating for patients

08:58- Joe and Dr. Leroux talk about the mountains of paperwork one needs to complete in order to get proper care

13:49- Dr. Leroux shares what is exciting her the most about the work Migraine Canada is accomplishing

16:38- Joe asks Dr. Leroux to share what she wants people around the world to know about migraine and related diseases

21:22- Joe tells Dr. Leroux about a recent migraine attack, that without the proper treatment, would have had him out for a day or two

 Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

On this episode of Talking Head Pain, Joe is joined by Dr. Nicole Rosendale, a neurologist and principal researcher of a study called Migraine, Migraine Disability, Trauma and Discrimination in Sexual and Gender Minority Individuals. Joe and Dr. Rosendale discuss the link between trauma and migraine, research as a form of activism, and the future of LGBTQ+ migraine research.

Among the highlights in this episode:

01:19- Dr. Rosendale opens the episode by introducing the research she conducted on migraine in the LGBTQ+ community

02:31- Dr Rosendale tells Joe about the connection between migraine severity and trauma and discrimination for people in the LGBTQ+ community, as well as issues getting access to proper migraine care and treatments

04:51- Joe asks Dr. Rosendale about the distinction between chronic and episodic migraine in the research

06:26- Dr. Rosendale gives the definition of trauma that her and her colleagues used

09:46- Dr. Rosendale tells Joe about why she got into neurology and why pioneering research in the LGBTQ+ community is vital

11:52- Joe and Dr. Rosendale discuss the role of research as an important part of activism

13:23- Joe asks Dr. Rosendale how the research in migraine and LGBTQ+ patients can help her fellow health care providers

15:15- Dr. Rosendale tells Joe what direction future studies can go based on the foundation this study made

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

This week on Talking Head Pain, Joe is joined by Danielle Fujii, an environmental designer, migraine patient, and creator of Zden, a sleep tent designed to help people with migraine get a better night’s sleep.

Join Joe and Danielle as they talk about the kinds of environments that can trigger migraines, vacations ruined by migraine, and how Danielle came up with the idea for Zden.

Among the highlights in this episode:

01:12- Danielle describes her worst migraine experience

02:52- Joe asks Danielle about her background as an environmental designer, and how that expertise helps people living with migraine

06:05- Danielle talks about how the design changes of her local mall impact the experience of people with light sensitivity and how LED lights can be an environmental trigger

10:22- Danielle tells Joe about Zden and why she created a product specifically for migraine patients

16:36- Danielle talks to Joe about why other sleep accessories don’t work for her

 Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

This week on Talking Head Pain, Joe is joined by Dr. Sara Crystal, a migraine patient, headache specialist, and Medical Director of Cove, a telemedicine service providing access to specialized care to migraine patients. Join Joe and Dr. Crystal as they discuss dismissive providers, building trust during a virtual appointment, and how being on the right treatment plan can allow you to be present for whatever life throws at you.

Among the highlights in this episode:

00:41- Joe introduces Dr. Sara Crystal, who tells us about her background and what brought her to the headache and migraine field

01:58- Dr. Crystal discusses how being a provider helps her advocate for herself as a patient

03:29- Joe recounts his experience with a dismissive provider while getting tested for COVID at an urgent care

04:29- Dr. Crystal shares advice for migraine patients from a physical therapy perspective

05:56- Joe asks Dr. Crystal about the importance of access to telehealth and telemedicine appointments for underserved migraine patients

07:23- Dr. Crystal gives advice to both patients and providers about how to get the most out of a virtual appointment

08:37- Going to the doctor requires a lot of trust, and Dr. Crystal talks about building trust in a virtual appointment

10:16- Dr. Crystal discusses the beauty of telling your provider that the treatment plan is working and helping live better with migraine, and Joe shares a story about his treatment plan making it possible for him to be there for his family

12:25- Joe asks for advice on dealing with stressors for people who are not yet on the right treatment plan

14:35- Dr. Crystal shares what she wishes the society as a whole knows about migraine

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

This week on Talking Head Pain, host Joe Coe is joined by Namira Islam Anani, a lawyer specializing in human rights education and training and a graphic designer. While recovering from COVID in 2020, Namira noticed that her headaches were getting worse. This led her to seek care from a neurologist who opened her eyes to what she was experiencing.

Join Joe and Namira as they discuss long COVID, ableism in her profession, and the importance of creating and holding space.

Among the highlights in this episode:

00:57- Joe kicks off the episode by asking Namira about getting a migraine diagnosis in regard to long COVID

03:11- Namira talks about her experience with headache and migraine prior to her COVID infection

03:45- Namira describes the symptoms of her migraine attacks and talks about the worst attack she’s experienced

05:17- Joe asks Namira about the ability to be self-aware that she is experiencing a migraine

07:17- Joe and Namira discuss the intersection between human rights and healthcare and disability rights

10:59- Joe asks Namira to share advice for aspiring attorneys and advocates who also live with migraine

13:21- Joe and Namira talk about the pressure to change systems that were not designed for people with disability

14:52- Namira discusses the impact migraine has had on her personal life

19:11- Joe asks Namira if she sees diversity in the migraine community and in the space around COVID

24:10- Namira talks about the takeaways and wisdom she’s learned from the BIPOC community of COVID “long haulers”

26:39- Joe asks Namira about the meaning of “holding space”

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

You can find Namira’s work at https://www.namiraanani.com/

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe talks with author, journalist, and fellow at the Global Healthy Living Foundation, JP Summers. Join Joe and JP as they discuss the toll that migraine can take on independence, the experience of her child being diagnosed with migraine, and the joys of reporting from Comic Con.

Among the highlights in this episode:

00:59- JP describes her worst migraine experience

03:58- Joe asks JP about the loss she’s experienced due to migraine attacks

06:12- JP discusses the emotional and physical toll that losing her career and independence took on her

08:00- JP talks about finding purpose and putting a positive spin on her situation and the importance of finding an online community

09:02- Joe asks JP about the experience of her son being diagnosed with migraine at 10 years old

11:09- JP discusses migraine within her family and within Hispanic culture

14:28- JP talks about going reporting from Comic Con while having a migraine preparedness plan

18:42: Joe and JP have some fun talking about Marvel vs. DC, Edward or Jacob, and JP’s experience interviewing movie star Mark Ruffalo

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

 

See omnystudio.com/listener for privacy information.

This week on Talking Head Pain, Joe talks with Tom Dabertin, Executive Director and CEO of the National Headache Foundation (NHF). Tom uses his experience of having migraine since his teens to inform the work he does with NHF. Join Joe and Tom as they talk about the lack of headache specialists, being a father while dealing with migraine, and Tom’s role as the Chairman of an annual Pierogi Festival.

Among the highlights in this episode:

00:43- Tom tells the story of the first migraine he experienced

02:49- Joe asks Tom about the impact migraine had on his high school and college experience

04:09- Tom talks about Migraine University, a resource for college students

06:44- Tom talks about migraine and fatherhood

08:00- Tom tells Joe about the lack of providers who specialize in migraine and headache disorders

14:03- Joe asks Tom about what motivates him to lead the National Headache Foundation

15:26- Joe and Tom have some fun while discussing Tom’s role as Chairman of an annual Pierogi Festival

19:50- Tom shares resources available at headaches.org

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by fellow migraine advocate and friend Alicia Torborg. Alicia serves as the Executive Director of the Association of Migraine Disorders, an organization built on the pillars of research, education, and awareness.

Listen along as Joe and Alicia discuss research being conducted by AMD, the duo’s perilous journey hiking Camelback Mountain, the history behind #ShadesForMigraine, and Alicia’s most rewarding moments working in migraine advocacy.

Among the highlights in this episode:

00:56- Alicia talks to Joe about her migraine diagnosis journey

02:46- Joe asks Alicia about the work and mission of the Association of Migraine Disorders

03:38- Alicia discusses the comorbidities project recently launched by Association of Migraine Disorders

04:34- Alicia tells the story of taking Joe on a hike up Camelback Mountain with her colleagues at AMD

07:58- After being a migraine patient, Alicia reflects on the most rewarding moments during her career in migraine advocacy so far and her philosophy on changing the world

11:28- Joe asks Alicia about his favorite AMD program, #ShadesForMigraine

16:03- Alicia discusses her earliest and worst migraine attack and the potential link between adolescent trauma and migraine

19:11- Alicia ends the episode by giving excellent pieces of advice to fellow migraine patients

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by Nicky Smith, a migraine and dizziness advocate who was recently featured as a contestant on the hit trivia show Jeopardy. Nicky shares their experience about having chronic migraine and dizziness as well as why it was important to discuss the conditions on the national stage. They also talk about the importance of building a strong community of migraine superheroes.

Among the highlights in this episode:

2:01: Nicky talks about the experience of being a contestant on Jeopardy

4:44: Joe and Nicky play “Category Is” and talk about their worst migraine experiences and navigating the health care system as a queer person

11:46: Nicky talks about their interest in the X-Men and the idea that people with migraine were the original superheroes

19:35: Joe asks Nicky about the messages they’ve received from migraine patients around the world after their appearance on Jeopardy

24:16: Joe closes the show by asking Nicky about behind-the-scenes drama from the set of Jeopardy

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected].

Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Eric Kaiser, a professor and neurologist at the University of Pennsylvania. Learn about sleep and cannabis research presented at the American Headache Society, and the inspiring work being done to better serve LGBTQ headache and migraine patients.

Contact Our Host:

Joe Coe, Director, Education and Digital Strategy at GHLF: [email protected]

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]. Catch up on all our episodes on our website or on your favorite podcast channel.

To receive headache/migraine related resources, giveaways, and latest episode releases, text the word "Headache" to 1-845-285-1563 to sign up.

See omnystudio.com/listener for privacy information.