Talking Head Pain

In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Dr. Mario Peres, President-Elect of the International Headache Society. Dr. Peres, hailing from São Paulo, Brazil, discusses the application of artificial intelligence (AI) in migraine diagnosis and management. They discuss how AI tools are being developed to improve diagnostic accuracy, which is crucial for effective treatment. Dr. Peres emphasizes the importance of validating these AI models to ensure they provide reliable and useful outcomes. 

Join Joe and Dr. Peres as they delve into the future of migraine care, emphasizing technology's role in enhancing patient self-management and care strategies.

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: [email protected]

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Nada Hindiyeh, Director of Headache Medicine at Metrodora Institute and CMO at Haven Headache & Migraine Center, and Dr. Lauren Natbony, Founder and CEO of Integrative Headache Medicine of New York. Recorded live at the American Headache Society’s (AHS) Annual Scientific Meeting in San Diego, CA, they discuss the complex interrelations between migraine, autonomic disorders such as POTS, Ehlers-Danlos Syndrome, and Mast Cell Activation Syndrome (MCAS). They highlight the importance of a holistic approach to treatment and the innovative work being done to create special interest groups within the AHS to address these issues.
 
Join them as they share insights and advances in treating these interconnected conditions.

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: [email protected]

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah welcomes Katrina, a patient advocate navigating multiple conditions including migraine and endometriosis. They discuss Katrina's journey — from years of misdiagnosis to finally finding a doctor who would listen and offer effective migraine treatment options. Katrina and Sarah dive into the overlap of endometriosis and migraine advocacy, highlighting the challenges and breakthroughs along the way. This discussion provides insights into the daily realities of shared decision-making with your health care team, the journey to diagnosis, and the importance of self-advocacy.

Among the highlights in this episode:

02:05: Katrina describes the onset and progression of their migraine attacks, providing insights into the symptoms that go beyond a typical headache

03:58: Katrina shares their journey from misdiagnosis to finally getting a correct diagnosis and effective treatment plan, emphasizing the pivotal role of a neurologist

04:25: Sarah and Katrina discuss the overlap of endometriosis and migraine, and the challenges of being heard and properly diagnosed

07:26: Katrina and Sarah discuss the impact of advocacy in navigating health care and the importance of self-advocacy in chronic illness management

08:53: Katrina reflects on how their advocacy in endometriosis has empowered them in other areas such as migraine

14:41: Sarah and Katrina discuss the emotional and physical toll of chronic illness and the societal pressures that affect how people manage their health

19:11: Katrina expresses their approach to health management amidst advocacy fatigue

20:29: Closing thoughts on the importance of prioritizing personal health and the collective need for better health care understanding and support

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: [email protected]

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.

Join Sarah and Nicole for an episode that offers valuable insights for anyone looking to advocate for better migraine care and understanding.

Among the highlights in this episode:

01:20: Nicole recounts a severe migraine attack following a concussion in 2016, detailing the array of debilitating symptoms she experienced

02:25: Nicole discusses how educating herself about migraine, joining support groups, and learning to advocate for herself were crucial steps in managing her condition

03:50: Nicole shares practical advice on preparing for medical appointments, including keeping detailed health records and symptom notes to improve communication with health care providers

06:13: Nicole and Sarah highlight the significance of finding a community through support groups, sharing experiences, and not feeling alone in the journey with migraine

07:35: Nicole discusses the challenge of advocating for herself among family and friends and the importance of sharing personal stories to educate others about the realities of living with migraine

13:31: Nicole reflects on what motivated her to seek better treatment and care, emphasizing the role of research, therapy, and the determination to live independently despite her condition

15:26: Nicole acknowledges that despite best efforts, some people still struggle with migraine management due to the unique ways migraine affects each individual

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: [email protected]

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds light on the challenges and opportunities in treatment for those living with episodic migraine.

If you are a health care provider or a patient living with episodic migraine, make sure to listen to the episode and participate in our survey. This will help more patients like you, get diagnosed and on proper treatment.

Healthcare, Nurse & ER Practitioner Survey: https://www.research.net/r/FBDYLHM

Episodic Migraine Patient Survey: https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, recorded live at Headache on the Hill, Sarah brings together a diverse group of patient advocates to share their personal stories and reasons for advocating for migraine awareness and better treatment access. The episode delves into the importance of advocacy, the need for improved health care policies, and the power of sharing one's story to break the silence and stigma surrounding chronic migraine.

Join Sarah and her guests for an inspiring episode that highlights the collective effort of the migraine community to make a lasting impact on the hill and beyond.

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe is joined by Dr. Andrew Charles, Professor of Neurology and Director of the UCLA Migraine and Pain Program, as well as the current President of the American Headache Society (AHS). Together, they explore the groundbreaking updates in migraine prevention therapy, highlighting the AHS's recent position on CGRP inhibitors as a first-line treatment. Dr. Charles shares insights into the development of these migraine-specific therapies, their efficacy, and the significant impact they have on patients' lives, offering a glimpse into the future of migraine management. 

Join Joe and Dr. Charles for a compelling conversation that shines a light on the latest advancements in migraine treatment and the positive changes they bring to the migraine community.

For more information, visit: https://ghlf.org/migraine/ahs-recommends-cgrp-therapies/ 

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by Nahid Shukralla, a migraine patient and visual artist who uniquely intertwines her experiences living with migraine into her artwork. Nahid shares her journey and how chronic migraine led her back to her first love: art. Nahid also delves into her innovative approach to visualizing migraine auras through digital art, offering a rare glimpse into the visual phenomena that many with migraine experience but are seldom able to share.

Join Sarah and Nahid for an inspiring episode that bridges the worlds of art, medicine, and lived experience, providing insights and validation for those on a similar journey.

Among the highlights in this episode:

04:05: Sarah reflects on Nahid's experience, emphasizing the specific challenges and limitations that pregnant individuals face when dealing with migraine treatments, sparking a discussion on the need for safer and more effective treatment options

04:53: Nahid recounts her lifelong passion for art, and what led her from a career in medicine to embracing her true calling in the arts

07:07: Nahid shares how she pivoted careers, offering listeners insights into navigating personal and professional life with a chronic condition

08:53: Nahid discusses her inspiration for using her art to capture the dynamic nature of auras

13:35: Nahid discusses the positive feedback and validation she has received from the migraine community on Instagram

15:44: Sarah and Nahid discuss the significant impact of visual representation for those with migraine, highlighting how Nahid's art has provided a template for others to explain and validate their experiences, potentially aiding in medical and social understanding

17:26: Nahid speaks on her self-care routine and the adjustments she's made in her life to manage living with chronic migraine

19:46: Sarah and Nahid discuss the importance of openness and support from family and friends in managing chronic illness, advocating for a society that understands and accommodates the limitations of those living with conditions like migraine

Read more about Nahid: https://ghlf.org/advocacy/painting-and-animating-to-raise-migraine-awareness/

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Sarah is joined by chronic migraine patient Taylor, to explore the intricacies of living with chronic migraine and navigating the health care system. They discuss the evolution of emergency care for migraine patients, the shifting landscape of migraine treatment, and how living in pain can affect our mental health. The episode also touches on the critical role of patients in treatment decisions, the stigma surrounding migraine, and how just being fine, is not fine when it comes to patient health.

Join Sarah and Taylor for a heartfelt conversation that underscores the importance of support, understanding, and advocacy in the migraine community.

Among the highlights in this episode:

01:33: Taylor discusses her worst migraine attack, detailing the intensity and confusion between a migraine and a stroke, emphasizing the severity of her condition and the challenges of seeking ER treatment

03:30: Sarah and Taylor discuss the stigma around migraine and the importance of education and understanding in both medical treatment and social acceptance

04:27: Taylor shares her approach to living authentically with chronic migraine, highlighting the importance of transparency in personal and professional relationships to manage expectations and foster understanding

06:44: Sarah reflects on her experience disclosing her chronic illness at work, contrasting negative and positive employer responses, underscoring the importance of supportive work environments

08:59: Taylor details her journey through the health care system, illustrating the trial and error process of finding effective migraine care

13:43: Taylor discusses her proactive role in her treatment journey, including tracking symptoms, educating herself, and advocating for better care, highlighting the importance of patient involvement in health care decisions

17:00: Taylor shares her experience with new migraine treatments and the significant improvement in her condition, emphasizing the impact of advancements in migraine medication and the importance of persistence in seeking effective treatment

20:29: The episode closes with a discussion on the interplay between chronic pain, mental health, and the importance of advocacy and education in improving outcomes for those living with migraine

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this episode of Talking Head Pain, Joe Coe welcomes Izac Ross, Founder of the Haven Headache & Migraine Center and a patient advocate. They delve into Izac's lifelong journey with migraine, beginning with his childhood diagnosis and the challenges of dealing with the condition through various stages of life.

Izac discusses his experiences with a range of treatments, highlighting the transformative effects of newer therapies like CGRP inhibitors and Botox. The conversation also emphasizes the importance of not settling for subpar treatment, advocating for oneself in medical settings, and managing a career while coping with chronic migraine.

Among the highlights in this episode:

01:33: Izac describes the migraine he experienced the weekend prior to the recording

02:30: Izac highlights the social challenges and masking involved with invisible disabilities like migraine

03:19: Izac shares his early diagnosis at age 2, the rarity of pediatric migraine diagnoses at that time, and the challenges he faced

05:19: Izac and Joe discuss Izac's pursuit of “migraine freedom” and his experience with treatment advancements, including Botox and CGRP inhibitors

09:06: Izac emphasizes the importance of advocating for proper treatment and support

11:15: Izac discusses the importance of self-care, setting boundaries, and empowering others in a leadership role

13:59: Joe and Izac discuss the necessity of overperforming to compensate for the debilitating symptoms of migraine

15:31: Izac shares the importance of early disclosure of his condition to employers and the role of managers in providing reasonable accommodations

16:59: Izac explains the motivation and goals behind the creation of the Haven Headache & Migraine Center, emphasizing access to quality care and crisis management

19:50: Izac concludes by inviting listeners to check out the Haven Headache & Migraine Center online, discussing their clinical team, and plans for expansion

For more information go to https://www.havenheadache.com/

You can also find Izac on Instagram with the handle @gaywithaheadache

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: [email protected]

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: [email protected]

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected]  

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.