In this episode, we hear from Carly, Chief Research and Innovation Officer of #LupusChat, member of the National Institute of Health’s COVID-19 treatment guidelines panel as well as a research lead and liaison with the COVID-19 Global Rheumatology Alliance. Carly offers her unique perspective and valuable insight as a person living with lupus and asthma.

Among the highlights in this episode:

01:47- Sarah introduces today’s guest, Carly

02:24- Carly shares the earliest memory of having an asthma attack

04:47- Sarah asks Carly if her mother, who also has asthma, prepared her for dealing with asthma attacks

06:33- Carly tells Sarah what love and support mean to her as it relates to asthma care

07:24- Sarah asks Carly if asthma has ever interfered with her relationships with loved ones

10:22- Carly talks about the people in her life who also have asthma

11:50- Carly shares the conversations she’d had with her partner about asthma preparedness and why it’s important to be open about chronic illness

16:32- Sarah asks Carly about how the LGBTQ+ community has supported her asthma journey

17:40- Carly talks about the support she’s received from her social media community #LupusChat

19:54- To close out the episode, Carly shares advice for those newly diagnosed with asthma

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In this episode, we hear from Frankie Lee, a trans asthma patient who works in tech support and enjoys streaming. Frankie talks to us about the importance of support, listening to your body, and the value of self-advocacy when it comes to getting proper asthma care.  

Among the highlights in this episode:

01:07- Sarah introduces today’s guest, Frankie Lee

01:55- Frankie recalls his earliest memory of having an asthma attack

02:55- Frankie tells Sarah about the various activities asthma prevented him from doing as a kid

05:35- Sarah asks Frankie if his asthma is now managed as an adult

06:07- Sarah and Frankie talk about what love and support means in relation to asthma care

07:54- Frankie tells Sarah how asthma plays a part in his relationship

09:57- Frankie reveals what he’s gained back since advocating for better asthma treatment

13:15- Sarah and Frankie discuss how being a part of the LGBTQ+ community helped Frankie in his asthma journey

17:26- Frankie offers insight on how to make doctors’ offices safer and more accepting of gender-affirming and LGBTQ+ care

23:34- To close out the episode, Frankie shares advice for those newly diagnosed with asthma

See omnystudio.com/listener for privacy information.