The Bloodline with Blood Cancer United Podcast

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• Medical Power of Attorney
• Ulman Foundation

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear about the variety of treatments William went through, his relapses and then subsequent stem cell transplant. Now one year out of transplant, he shares about his post-cancer journey – going viral on TikTok, becoming the face of the LLS Giving Tuesday campaign and then starting a podcast with another Young Adult Cancer survivor.

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• CancerCon by Stupid Cancer
• ClonoSeq®
• CAR T-cell Therapy
• Stem Cell Transplant
• The Illest. Podcast
• William’s TikTok page
• Family Service Society, Inc.
• LLS Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Amgen Inc. and Jazz Pharmaceuticals.

The post I Will Survive: A Viral TikTok Star’s Journey through Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through.

Mentioned on this episode:

• Acute Lymphomblastic Leukemia (ALL)
• Communicating with your Healthcare Team
• CancerCon
• Stupid Cancer
• Young Adult Chat
• More Young Adult Specific Resources
• Bone Marrow Transplant

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline with Blood Cancer United Podcast.

Join Alicia and Lizette as they speak with Dr. Shella Saint Fleur-Lominy, MD, PhD, a hematologist and physician scientist from NYU Langone Health in New York, New York. Dr. Saint Fleur-Lominy is triple board certified in internal medicine, hematology and medical oncology. On this episode, Dr. Saint Fleur-Lominy explains the signs and symptoms of acute lymphoblastic leukemia (ALL), tests and examinations that are used to detect and diagnose ALL, how ALL is treated and the potential side effects of treatment. Dr. Saint Fluer-Lominy describes when transplant as well as chimeric antigen receptor (CAR) T-cell therapy may be considered as a treatment option and her excitement for promising new treatments. Dr. Saint Fleur-Lominy shares in great detail about the chromosomal changes for those with in ALL and emphasizes that there is nothing that a patient did to get their ALL diagnosis. She encourages patients to seek support and clarity about their disease so that they are not left feeling like their diagnosis is their fault.

Mentioned on this episode:

• Acute lymphoblastic leukemia (ALL)
• Signs and symptoms of ALL
• Types of ALL treatment
• Chimeric antigen receptor (CAR) T-cell immunotherapy
• Stem Cell transplantation

Additional LLS Support Resources:

• LLS Community

Support for this episode provided by Amgen and Takeda Oncology.

The post How is Acute Lymphoblastic Leukemia (ALL) Diagnosed and Treated? first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society speak with Bishoy Tadros.  Bishoy was diagnosed with acute lymphoblastic leukemia (ALL) at three years old. As an Egyptian immigrant with many things for his family to consider such as, where the best treatment would be and how to go about relocating, Bishoy describes his journey as a cancer survivor. He explains the challenges he faced both individually and as a family, his turning point which occurred in 2017 at Mile 40 of an IronMan, and what his diagnosis has taught him about overcoming life’s obstacles.

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• Leukemia
• Bishoy Tadros
• Venous

Additional LLS support

• Information

Support for this episode provided by Amgen and Takeda Oncology.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Survivor, Author, Athlete & Overcomer: Bishoy’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette speak with Alan Kraimer. Alan is an acute lymphoblastic leukemia (ALL) survivor who owns a small medical supply distribution company in Georgia. In 2014, what Alan and doctors believed to be strep throat soon proved to be otherwise. It was not until his third visit to Urgent Care that he was referred to a hematologist in which he received his leukemia diagnosis. Join Alan, Alicia and Lizette as Alan shares how he was diagnosed, questions he had for his healthcare team, the important role his wife played as his caregiver, and how he learned about an interesting new treatment for his dry eyes called autologous serum drops.

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Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• Leukemia
• Stem cell transplant
• Autologous serum eye drops
• Side effects
• Patti Robinson Kaufmann First Connection Program

Additional LLS support resources:

• Information Specialists
• Free telephone/web patient programs
• LLS Community
• Free booklets
• Financial support
• Online chats
• Caregiver support
• Support groups

Support for this episode provided by Amgen and Takeda Oncology.

The post My ALL Diagnosis: Alan’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in New York, New York who is affiliated with multiple hospitals including NYC Health and Hospitals, Bellevue, and NYU Langone Hospitals. On this episode, Dr. Abdul-Hay explains how ALL is treated and addresses pre-treatment considerations. He also shares the long-term effects of treatment and the importance of getting a second opinion and open communication between a patient and their healthcare team.

Click here to listen to our other episode with Dr. Mohammad Maher Abdul-Hay where he explains how ALL is diagnosed.

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Mentioned on this episode:

• Acute lymphoblastic leukemia
• CAR (chimeric antigen receptor) T-cell immunotherapy
• Types of ALL treatment
• Allogeneic stem cell transplantation 
• Chemotherapy
• Clinical trials
• Relapsed and refractory

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Caregiver support
• Support groups

Support for this episode provided by Amgen and Takeda Oncology.

The post Treating Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join Alicia and Lizette as they speak with Dr. Mohammad Maher Abdul-Hay, a hematologist and bone marrow transplant physician in New York, New York who is affiliated with multiple hospitals including NYC Health and Hospitals, Bellevue, and NYU Langone Hospitals. On this episode, Dr. Abdul-Hay defines and explains how acute lymphoblastic leukemia (ALL) is diagnosed and the risk factors and symptoms of ALL. He also stresses the importance of patients and families asking questions along their treatment journey to ensure that they feel comfortable with their healthcare team.

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Mentioned on this episode:

Additional LLS Support Resources:

Support for this episode provided by Amgen and Takeda.

The post Diagnosing Acute Lymphoblastic Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Timothy, an ALL young adult survivor, who shares how his culture, attitude and relationship with his healthcare team during treatment steered him towards a profession he would have never envisioned for himself.

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Mentioned in this episode:

Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Support for this episode provided by Amgen.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Timothy’s Turning Point first appeared on The Bloodline with Blood Cancer United Podcast.