The Bloodline with LLS

The Bloodline with LLS

By The Leukemia & Lymphoma SocietySociety & CultureScienceHealth & Fitness
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The Bloodline with LLS episodes

  • Empowering Lives: Advancements in Chronic Lymphocytic Leukemia
    Deborah Stephens, DO

    Join us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL).  We also gain valuable insights into enhancing patient’s quality of life

    In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies that not only optimize disease management, but also minimize the impact of side effects. Your path to empowered long-term care with CLL begins here.

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    Mentioned on this episode: 

    • Chronic lymphocytic leukemia (CLL)
    • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
    • S1925 High-risk CLL study
    • Stem Cell Transplantion
    • CAR T-cell Therapy
    • Graft-vs-host Disease (GVHD)
    • Clinical Trial Support Center
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Free telephone/web patient programs 
      • Free booklets 
      • Financial support
      • Caregiver support 
      • Young Adult Resources
      • Survivorship Workbook
      • Online chats 
      • LLS Community 
      • Support groups 
      • Patti Robinson Kaufmann First Connection Program 
      • Free Nutrition Consultations
      • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

        39 min
      • Accelerating Hope for Aggressive Non-Hodgkin Lymphoma
        Kieron Dunleavy, MD

        Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease.

        In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the remarkable momentum of scientific progress that increased the understanding and management of lymphoma, igniting a renewed sense of hope for patients and their loved ones.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Non-Hodgkin lymphoma
        • Chronic lymphocytic leukemia
        • POLARIX study
        • Stem Cell Transplantion
        • CAR T-cell Therapy
        • ZUMA-7 Study
        • TRANSFORM Study
        • Graft-vs-host Disease (GVHD)
        • Minimal/Measurable Residual Disease (MRD)
        • Clinical Trial Support Center
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Free telephone/web patient programs 
          • Free booklets 
          • Financial support
          • Caregiver support 
          • Young Adult Resources
          • Survivorship Workbook
          • Online chats 
          • LLS Community 
          • Support groups 
          • Patti Robinson Kaufmann First Connection Program 
          • Free Nutrition Consultations
          • Support for this episode provided by: Eli Lilly and Company and Genentech, Inc. & Biogen.

            39 min
          • Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML)
            Mrinal Patnaik, MBBS

            While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who are affected by it.

            In this episode, Dr. Mrinal Patnaik of the Mayo Clinic in Rochester, MN, discusses the unique aspects of CMML and how it is classified and treated.  Dr. Patnaik shares the latest treatment advances and discusses the importance of patients’ quality of life.

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Chronic myelomonocytic leukemia (CMML)
            • Myeloproliferative Neoplasms (MPNs)
            • Myelodysplastic syndromes (MDS)
            • Acute myeloid leukemia (AML)
            • Stem Cell Transplantion
            • Graft-vs-host Disease (GVHD)
            • Minimal/Measurable Residual Disease (MRD)
            • Clinical Trial Support Center
            • Spanish Risk Stratification System
            • French Risk Stratification System
            • RAS mutations (study) – Nature Communications
            •  TET2 mutations (study) – Leukemia
            • Decitabine Versus Hydroxyurea (study)– Journal of Clinical Oncology
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Free telephone/web patient programs 
              • Free booklets 
              • Financial support
              • Caregiver support 
              • Young Adult Resources
              • Survivorship Workbook
              • Online chats 
              • LLS Community 
              • Support groups 
              • Patti Robinson Kaufmann First Connection Program 
              • Free Nutrition Consultations
              • Support for this episode provided by: Taiho Oncology, Inc.

                32 min
              • The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care

                When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment.

                In this episode, we are taking you onsite to the 5th Annual Global Adolescent and Young Adult Cancer Congress in Long Beach, CA. Elissa met with experts who discussed mental health, the resiliency of AYA patients when facing uncertainty, healthcare transitions and disparities, and how patients can advocate for their care. 

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                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Young Adult Resources
                • Promoting Resilience in Stress Management
                • Stupid Cancer
                • CancerCon
                • First Descents
                • True North Treks
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • LLS Financial support (Copay assistance)
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Caregiver support 
                  • Survivorship Workbook
                  • Clinical Trial Support Center
                  • LLS Public Policy and Advocacy
                  • Online chats 
                  • LLS Community 
                  • Support groups 
                  • Patti Robinson Kaufmann First Connection Program 
                  • Free Nutrition Consultations
                  • 46 min
                  • Be Informed: Beneficial Medicare Changes
                    Brian Connell

                    Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact cancer patients and ease this financial burden.

                    In this episode, Brian Connell, the Vice President of Federal Affairs at LLS, discusses the new changes in Medicare for 2024 and 2025, as a result of the recent Inflation Reduction Act. Medicare recipients will benefit from these important changes, making cancer treatment more affordable and accessible.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • LLS Financial support (Copay assistance)
                    • LLS Public Policy and Advocacy
                    • Information Specialists 
                    • Inflation Reduction Act and Medicare
                    • Low Income Subsidy Program
                    • Additional LLS Support Resources: 

                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Caregiver support 
                      • Young Adult Resources
                      • Survivorship Workbook
                      • Clinical Trial Support Center
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Free Nutrition Consultations
                      • 23 min
                      • Community Outreach in The Field: Red, Bred & Led Houston
                        Mia Johnson

                        Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised of LLS Staff, will be on the ground interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will make listeners feel like they are right in the middle of the action!

                        In this episode, Mia Johnson, the National Community Outreach Manager for LLS’s Myeloma Link program, hosted an event curated for Black women called “Red, Bred & Led” in Houston, TX. This weekend-long event consisted of a Sip and Paint Party, a Luxe brunch, and Sunday worship, all with an educational overview of multiple myeloma. This event heightened awareness of how myeloma disproportionately affects Black communities.  A heavy focus was given on female caregivers, and how they can spread awareness and share resources available to them within their families and communities if a loved one is diagnosed with a blood cancer. 

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Myeloma Link
                        • Multiple Myeloma
                        • Community Outreach In The Field: Blood and Chess Atlanta
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Financial support
                          • Caregiver support 
                          • Young Adult Resources
                          • Survivorship Workbook
                          • Clinical Trial Support Center
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • Support for this episode provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.

                            28 min
                          • Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs)
                            Angela Fleischman, MD

                            Myeloproliferative Neoplasms (MPNS) is an umbrella term that includes myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). In this episode, Dr. Angela Fleischman of the Chao Comprehensive Cancer Center in Orange, CA, delves into these disorders in more detail. She shares how a patient’s quality of life can be improved with the latest advancements in treatment.  

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Myeloproliferative Neoplasms (MPNs)
                            • Acute myeloid leukemia (AML)
                            • Stem Cell Transplantion
                            • Graft-vs-host Disease (GVHD)
                            • 23andMe®
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Financial support
                              • Caregiver support 
                              • Young Adult Resources
                              • Survivorship Workbook
                              • Clinical Trial Support Center
                              • Online chats 
                              • LLS Community 
                              • Support groups 
                              • Patti Robinson Kaufmann First Connection Program 
                              • Free Nutrition Consultations
                              • Support for this episode provided by: Bristol Myers Squibb.

                                31 min
                              • Atacando las Células Cancerosa:  Avances en La Terapia de Células T con Receptores de Antígenos Quiméricos (CAR-T)
                                Carlos Silva, MD and Margie

                                Únase a nosotros mientras hablamos sobre la terapia de células T con receptores de antígenos quiméricos (CAR-T, en inglés) con el Dr. Carlos Silva, hematólogo/oncólogo, especialista en trasplante de médula ósea y terapia celular del equipo de Hematología Maligna y Terapia Célular de Moffitt en el Sistema de Salud Memorial en Pembroke Pines, Florida.  En este episodio, exploramos los últimos avances y lo que se espera en el futuro para esta terapia transformadora.

                                Veamos como este tratamiento innovador dará esperanza a los pacientes con cáncer de la sangre y a sus familiares. Aprenderemos como a través de la utilización de terapias dirigidas, podemos ahora ver un futuro lleno de mejores resultados y posibles curas.

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                                Mencionado en este episodio: 

                                • Terapia  de células T con receptores de antígenos quiméricos (CAR-T)
                                • Proceso para la terapia de células T con receptores de antígenos quiméricos (CAR T-cell therapy, en inglés)
                                • Síndrome de liberación de citoquinas
                                • Trasplante de cédulas madre
                                • Centro de apoyo de ensayos clínicos
                                • Recursos de asistencia adicionales de LLS: 

                                  • Sitio web en español de LLS
                                  • Alimentos y nutrición
                                  • Apoyo Económico
                                  • Aplicación móviles gratuitas
                                  • Especialistas en información (siglas IRC)
                                  • Manuales del cuidador
                                  • Manuales del sobreviviente
                                  • Programas de asistencia económica al paciente
                                  • Publicaciones informativas gratuitas
                                  • Webcast, Videos y Episodios de Pódcast
                                  • Este episodio es apoyado por: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp.

                                    28 min
                                  • Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML)

                                    Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet.

                                    In this episode, Jonathan, a three-time cancer survivor, shares his journey of nutrition and exercise through his cancer treatments. Jennifer gives tips on putting together balanced meals that provide patients with the nutrients they need to nourish their bodies during cancer treatments. All cancer patients and caregivers can benefit from this episode, as we learn that no step is too small to maintain good nutrition.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • LLS PearlPoint Nutrition Services®
                                    • Chronic Myeloid Leukemia
                                    • Thin Blue Ride (ThinBlueRide.org)
                                    • Stem Cell Transplant
                                    • America’s Most Beautiful Bike Ride – LLS Team In Training
                                    • Shred for Red
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Financial support
                                      • Young Adult Resources
                                      • Survivorship Workbook
                                      • Caregiver support 
                                      • Clinical Trial Support Center
                                      • Online chats 
                                      • LLS Community 
                                      • Support groups 
                                      • Patti Robinson Kaufmann First Connection Program 
                                      • Free Nutrition Consultations
                                      • Support for this episode provided by: Novartis Pharmaceuticals Corporation.

                                        40 min
                                      • Quality-of-Life: Managing Cancer-Related Fatigue

                                        Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed.

                                        Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve quality of life during cancer treatments and survivorship.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Cancer-related fatigue
                                        • Cancer-related fatigue fact sheet
                                        • Transplant Support and Graft-vs-Host Disease (GVHD) podcast episode
                                        • Stem Cell Transplant
                                        • Caregiver support 
                                        • Additional LLS Support Resources: 

                                          • Information Specialists 
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Financial support
                                          • Young Adult Resources
                                          • Survivorship Workbook
                                          • Clinical Trial Support Center
                                          • Online chats 
                                          • LLS Community 
                                          • Support groups 
                                          • Patti Robinson Kaufmann First Connection Program 
                                          • Free Nutrition Consultations
                                          • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                                            32 min

                                          About The Bloodline with LLS

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                                          A Podcast for Patients and Caregivers