In this episode we talk about Caregiving in a sense of a caregivers perspective and what we need to do to be an advocate as a caregiver. 

The Australian Practitioner Regulation Agency: How are complaints or concerns managed?

https://www.ahpra.gov.au/Notifications/How-to-submit-a-concern.aspx

Human Rights Commission : How to make a complaint

https://humanrights.gov.au/complaints

Commonwealth Ombudsman making a complaint: what they do

https://www.ombudsman.gov.au/How-we-can-help

here’s a great guide on how to advocate for yourself or others 

http://www.sa.agedrights.asn.au/files/19_how_to_advocate_yourself_and_others.pdf

If you need someone to advocate for you and you are disabled there is the disability advocacy finder:

Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.

To listen to Rods My FND Reality : his Caregiving story click below

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

For more information on Carer Gateway 

https://www.carergateway.gov.au/

their phone number is 1800 422 737

also join their Facebook page to keep updated and their support groups.

For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

https://www.facebook.com/groups/588224248292396

For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

https://www.neurokid.co.uk/

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

Other podcasts/ blogs / vlogs to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

Bed Life and Beyond by Rach also a lovely FNDer 

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks

follow on Instagram @ Meg.jacks_

TicTok: @megjacks

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND