In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome.

Contact Robin at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

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In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding those with vision impairments. The episode highlights the collaborative efforts within the sight loss community, the significance of addressing CBS openly, and the impact of cognitive therapies and medication adjustments on managing CBS hallucinations.

Contact Chris Wilsdon at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

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In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self.

For more information about Tanya and for a link to join her support group, Coffee with

Caregivers visit https://tanyastraker.com

Contact Tanya at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome.

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact us at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome.

Contact Dr. Skorin at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact us at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome.

Contact Irvine at [email protected]

Irvine’s website https://savinghumanity.net/

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact us at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

Contribute to this podcast's sustainability Donate

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond interviews Esme’s Umbrella founder, Judith Potts. She shared how she first became aware of Charles Bonnet Syndrome (CBS) when it affected her mother and how she founded Esme's Umbrella, her Charity that focuses on raising awareness, offering support and sourcing funding for research for CBS.

Contact Judith Potts at [email protected]

Esme’s Umbrella’s website https://charlesbonnetsyndrome.uk

Charles Bonnet Syndrome Medical Codes:

ICD Code H53.16.8

Billable Code R44.1

For help with Charles Bonnet Syndrome in the UK call 0303 123 9999

For help with Charles Bonnet Syndrome in the US call 1-704-389-0160

Contact me at [email protected]

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Dave Hommel who shares his story as a caregiver for his mother who has journey Charles Bonnet Syndrome.

Contact Dave at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact us at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond discusses who Charles Bonnet was.

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact me at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Theo Blue who shares his journey with Glaucoma and Charles Bonnet Syndrome.

Contact Theo at [email protected]

For help with Charles Bonnet Syndrome call 1-704-389-0160

Contact us at [email protected]

For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]

For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].

For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

Contribute to this podcast's sustainability Donate