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In this powerful episode of the Charlotte Business Podcast, Beth shares her deeply personal journey living with Complex Regional Pain Syndrome (CRPS) — the most painful disease known to medicine — and how she turned her struggle into a mission to support others.
Beth runs Fight the Flame, a nonprofit dedicated to raising awareness, funding research, and supporting individuals battling CRPS.
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She describes the condition vividly:
In this conversation, Beth opens up about:
• What CRPS is and why it’s so often misdiagnosed
(“It takes most people anywhere from 8 to 10 years getting a proper diagnosis… doctors don’t know about the disease.”)
• Her own 30‑year battle with CRPS, including 20 surgeries and daily pain
• The emotional toll of living with an invisible illness
(“People look at me and say you’ve got makeup on… you can’t be in pain.”)
• How her nonprofit provides support groups, scholarships, grants, and international conferences
(“Last Saturday, we had a huge international conference… eight speakers from around the country.”)
• Why positivity is a core rule in her Facebook support community
• Her collaborations with universities and filmmakers to advance research and awareness
(“We just gave a big grant to Charles Maddox… he’s making a film, Trial by Fire 2.”)
Beth’s resilience, honesty, and advocacy make this one of the most eye‑opening conversations we’ve had. Her mission is simple but urgent: help people understand CRPS and ensure no one fights it alone.