Listen in as two brothers from Ohio discuss the diagnosis they have in common but the very different surgical paths they took to recovery and where they are today.

Come join us as we speak to a special mom as she recounts her journey though over 20 of her kids' surgeries. A mom of two sons with Chiari and related disorders discusses her trials and tribulations and ups and downs of mothering during difficult times of pre and post surgical procedures.

Noah's mom takes the role of interviewer and dives into Noah's Chiari and syringomyelia diagnoses and how he has maneuvered through the five stages of grieving to his current stage of acceptance. Listen in as Noah discusses his life before diagnosis, the day of diagnosis at age 12, and how he's taken the hardships and is attempting to give back to the Chiari community by raising money for research and awareness.

Jeff, the head trainer at Orangetheory East Delray, discusses his journey with Chiari Malformation, Syringomyelia, and his decompression surgery. He speaks about the importance of excercise to his quick recovery. He talks about how Orangetheory has helped him both mentally and physically.

I had the privilege of sending some lyrics to the musical genius of Clayton Musick. Listen in for my original song and an additional original from Clayton, as we dissect the meanings of these songs.

Noah, Andrea, and Cathy continue through their generational gap humor to explore the inner workings and makeup of the Bobby Jones CSF Foundation, and how the foundation has changed and shaped them. Join along as they have a heated acronym competition. LOL

Speaking with 2 of the 5 nation wide employees of Bobby Jones Chiari and Syringomyelia Foundation. This Foundations goal is to advance knowledge through research to educate the the medical, allied sciences and lay community about Chiari malformation, Syringomyelia, Ehlers-Danlos syndrome, and related disorders. The first episode is always a bit bumpy, but follow this podcast for a part 2. trust me it WILL get better!

A sneak peek at what's ahead...