Episode Summary: Receiving a cleft or craniofacial diagnosis can feel overwhelming—emotionally and practically. In this episode of The Cleft Collective Podcast, Dr. Anna Thurmes is joined by experts Dr. Renie Daniel and Dr. Eric Riklin as they map out what comes next. Together, they break down common questions that parents often face, the critical role of a supportive ACPA team, and practical coping strategies to help families navigate this new chapter. From processing the complex emotions of receiving the diagnosis to understanding the treatment process, this conversation highlights the importance of communication, self-care, and leaning on your tribe. Whether you’re a parent, caregiver, or just starting your journey, this episode will provide both guidance and solidarity on the road ahead.
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The Expert Guests
Dr. Renie Daniel is a board certified surgeon with dual degrees as both a medical doctor and a dentist. She serves as the Director and Surgeon of the University of Minnesota located in Moos Tower. She has over a decade experience as a cleft and craniofacial surgeon. She is a fellow of the American College of Surgeons and a Fellow of the American Academy of Pediatrics. After her surgical residcency and a cleft and craniofacial fellowship, she proudly served as member of the Cleft Team at the UNC- Chapel Hill for 8 years. She is passionate about caring for patients and their families at each stage of life. She is an internationally credentialed cleft surgeon with the distinguished volunteer organization, Operation Smile. Dr. Daniel can be contacted at [email protected] or 612-625-5945. Click to visit via the web
Dr. Eric Riklin is a craniofacial pyschologist. He does cognitive, behavioral, and socia-emotional evlauations and therapy for children and families as a member of the University of Minnesota Cleft and Craniofacial Team. Dr. Riklin did a postdoctoral fellowship in pediatric psychology and was a member of the Los Angelos Craniofacial Team before moving to Minnesota. He has over 40 publications and presentations related to resillience and mental health in youth with chronic illness. He brings the unique perspective as a professional who has first hand experience. Dr. Riklin was born with a rare craniofacial condition called Crouzon syndrome. He is passionate about giving back and helping others thrive on their journies.
To contact Dr. Riklin, call or email [email protected], 612-625-5945.
During the show, we discussed the importance of care under the direction of a team that is approved by the American Cleft Palate Craniofacial Association (ACPA). The ACPA is the leading scientific body and support network for cleft and craniofacial providers and they have an enormous number of resources for families and adults with cleft and craniofacial differences. For more information or to locate a team near you, visit the ACPA website.
Remember, don't go it alone! To contact the host, Dr. Anna Thurmes, email [email protected]. Don't forget- connect with us on social media and join the private FB group by clicking this link
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