If you missed part 1, please listen here. Kacey, a NC patient, recorded her appt with her doctor because he was dismissing her and she didn't know why. Listen to the recording of her appointment and then listen to Kacey explain how she felt when she was being treated this way.

This is part 2, which is a recording of her next appointment with a new pain doctor.

#thedoctorpatientforum 

Episode 35

What is ORRP? Do they help patients find continuity of care when patients lose their doctors? Why did they ban CPP advocates from their webinar with Project Echo?

The following links were mentioned:

ORRP - Pre-request for proposal

ORRP information on CDC's website

Cover2Resources- ORRP ARPO podcast

Please consider subscribing to our Patreon Page -

The Doctor Patient Forum is a national non profit

https://www.thedoctorpatientforum.com/

#thedoctorpatientforum 

Kacey, a NC patient, recorded her appt with her doctor because he was dismissing her and she didn't know why. Listen to the recording of her appointment and then listen to Kacey explain how she felt when she was being treated this way.

Claudia and Bev interview Dennis James Capolongo. Dennis is a retired patient advocate and former director of the EDNC in Washington DC. His 25 year career as a photojournalist came to an abrupt end after having been misdiagnosed with a disc herniation for minor hip pain in 2001. Unfortunately this led to a calamity of errors resulting in two subdural epidural steroid injections using Pfizer's DepoMedrol, an off-label, unapproved application of particulate steroid suspensions. He suffered progressive irreparable harm to his brain, spinal cord and eyes. His efforts at the FDA resulted in new warnings & revisions for all injectable steroids worldwide. Today he spends most days in bed controlling the severe adverse effects of these life-altering, unlicensed pain management procedures.

Although Dennis' org is closed, the videos are still available on his YouTube Channel - EDNC

To see the full unedited video including before and after the podcast discussions -

please go to The Doctor Patient Forum's Patreon Page: patreon.com/thedoctorpatientforum

If you've had an experience with ESI that you'd like to share with us, please email [email protected]

Disclaimer: The information in this podcast is not to be considered medical or legal advice

Netflix released another nonsense series about the Sacklers called Painkiller. Cameron English, a journalist from ACSH, published an amazing article calling them out on their lies. Cameron breaks it down for us.

Cameron's links:

Twitter @camjenglish

Podcast: Science Facts & Fallacies

The Doctor Patient Forum Patreon : patreon.com/thedoctorpatientforum

It's hard to believe it's been an entire year since we launched our podcast. In that year, we've had over 20,000 listens! We are so grateful to everyone who listens and supports us.

This is Part 2 of a look back at every episode.

The link to our Patreon page is ⁠patreon.com/thedoctorpatientforum⁠

Disclaimer: The information in this podcast is not to be considered medical or legal advice

It's hard to believe it's been an entire year since we launched our podcast. In that year, we've had over 20,000 listens! We are so grateful to everyone who listens and supports us.

This is Part 1 of a look back at every episode.

The link to our Patreon page is patreon.com/thedoctorpatientforum

Disclaimer: The information in this podcast is not to be considered medical or legal advice

Listen to Claudia and Bev discuss how The Doctor Patient Forum began and where we go from here.

Some things DPF is working on:

If DPF has ever helped you in any way, please consider donating. Even $1 per month helps! We need funding to take the next step in effecting change.

Marissa Cors is a fierce Sickle Cell Disease advocate. She is a 5th generation SCD Warrior and her family has a non profit called Axis Advocacy.

We first heard about Marissa when one of her Tik Tok videos went viral about a SCD patient, Brittany. Brittany was horribly mistreated, and recorded her mistreatment. Brittany sadly lost her life to SCD. Marissa was her advocate. Marissa's Tik Tok channel is called ⁠Escaping Sickle Cell Hell⁠.

The clips from Brittany's ER experience can be heard in their entirety ⁠here⁠.

Marissa's Twitter account is here

For behind the scenes discussion with Marissa, please go to The DPF Patreon page.

Disclaimer: The information in this podcast is not to be considered medical or legal advice

Dr. Carl Hart was a guest on our podcast earlier this year. Here is the link to the episode, in case you missed it.

Dr. Hart contacted us last week with some very exciting news! He asked us to help him co-edit a medical journal. This is such a huge opportunity and we are grateful we will be able to bring attention to the suffering of CPP's.