The fault in our genes

On this episode I talked about Rare Disease Day that was held on February 28th 2021.

On this episode, I talk about what is new born screening and our efforts to implement it in the state of Alabama.

On this episode I talked about the importance of self care as a caregiver and my journey, as well as tips of what has worked for me.

On this episodes I talk about our experience with illnesses and how they affect people with underlying conditions.

On this episode I talk about care and support, and what we do in a day to day basis.

This episode is a celebration for the approval of a new treatment for SMA. I will be talking about the different treatment options and our experience with them!

This is a brief introduction to our experience and the first time we heard about it, as well as our diagnosis process.