Join us for a deep dive into the Supporter & Researcher profiles from our CHD Parent Profile Assessment! We talk about what makes these unique CHD Parents so great, what skills they bring to the table, and where there is room for growth. We built the CHD Parent Profile Assessment to provide a personalized resource to help you better understand and navigate your unique experience. *Disclaimer: We are not certified professionals and this is by no means a scientifically proven resource. This assessment was compiled through our personal research, knowledge, and experiences.*

Download your free CHD Parent Profile Assessment at tomandkathansen.com!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

Join us for a deep dive into the Commander & Performer profiles from our CHD Parent Profile Assessment! We talk about what makes these unique CHD Parents so great, what skills they bring to the table, and where there is room for growth. In the next episode we will talk about the Supporter & Researcher CHD Parent profiles. We built the CHD Parent Profile Assessment to provide a personalized resource to help you better understand and navigate your unique experience. *Disclaimer: We are not certified professionals and this is by no means a scientifically proven resource. This assessment was compiled through our personal research, knowledge, and experiences.*

Download your free CHD Parent Profile Assessment at tomandkathansen.com!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode, we introduce our new free CHD Parent resource, the CHD Parent Profile Assessment! Just as every CHD child is different, so every CHD Parent is unique in how they experience and process the trials CHD brings. Having a child with CHD can be a very isolating experience, and when we experience it differently than our partner or other CHD Parents, it can increase the feeling of loneliness and hopelessness. We built the CHD Parent Profile Assessment to provide a personalized resource to help you better understand and navigate your unique experience. *Disclaimer: We are not certified professionals and this is by no means a scientifically proven resource. This assessment was compiled through our personal research, knowledge, and experiences.*

Download your free CHD Parent Profile Assessment at tomandkathansen.com!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter! Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode, we talk to CHD Parent Anna Jaworski. Anna is an amazing woman! She's a CHD advocate, author, publisher, podcast host, speaker, and co-founder of The Heart Community Collection. In Part 2 of our chat with her, we talk more about her son, CHD Warrior Alex, and his journey. We hear about what Anna thinks every CHD Parent should now, such as enjoying your pregnancy. We also hear about the amazing CHD resources she's created (that you definitely need to check out), and we hear her wisdom on how having positive connection with those around you improves you and your CHD child's anxiety.

See the list below for Anna's CHD resources!

Heart to Heart with Anna (Podcast) My Brother Needs an Operation (Book) Heart of a Mother (Book) Heart of a Father (Book)

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode, we talk to CHD Parent Anna Jaworski. Anna is an amazing woman! She's a CHD advocate, author, publisher, podcast host, speaker, and co-founder of The Heart Community Collection. In Part 1 of our chat with her, we talk about her son, CHD Warrior Alex, and the amazing man he's become. We also talk about the difficulty Anna had with getting a correct diagnosis for Alex as a baby when she knew there was something wrong but not exactly what it was. You will love Anna, her encouraging words, and the hopeful story of her son Alex. 

See the list below for Anna's CHD resources!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode, we talk to our friend Dr. Jonny Byrnes, a cardiologist in the Cardiac Intensive Care Unit at Children's of Alabama. He is a humble hero not only to our family, but to the numerous families he serves everyday. Dr. Byrnes played a pivotal role in our family's CHD story. You will love hearing from Dr. Byrnes about the important of relational connection in CHD Families, incredible innovations in cardiology, and so much more!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode, we talk to heart warrior, author, and CHD advocate Tori Geiger and her father Bob Schroeder. It was so special to hear from them both, and getting their perspective on how CHD shaped their lives. Bob and his wife did an amazing job changing their family's perspective on Tori's CHD, and help her view it as something that could give her purpose and valuable life skills. Tori is a light in the CHD & chronic illness world, inspiring others to see how their diagnosis is their strength. 

You can buy Tori's book "From Vulnerable to Victorious: Turning Your Chronic Illness into Your Victory Story" HERE on Amazon!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

In this episode we chat with our son's previous cardiologist, and new Chief of Cardiology at Children's Health Dallas, Dr. Nicolas Madsen. He shares his insights on the bright future of pediatric cardiology and what innovations we as CHD Parents can be excited to see come to fruition. We also discuss the nuances of the CHD Parent - Cardiologist relationship and how to build one that is most beneficial for your family. We think you'll love him as much as we do!  

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!   Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!   Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

We’ve compiled and discuss your answers to the very important question, “How can friends and family support CHD families in the midst of their hardships?” We're so appreciative of any help friends and family offer, but they are also always asking us this question. We want to provide them with a guide map that will help meet the needs of the CHD family they love. You all had wonderful tips to share. This is an episode you will want to share with your community!

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!  Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!  Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!

This episode features CHD Parent Brita Marcy from Happy Heart Mama (@britamarcy) on Instagram. She is an amazing CHD advocate, and we discuss what drew her to advocating for Heart Mamas & CHD. We spend time chatting about the affect of CHD on siblings, how important it is to practice self-care as a CHD Parent, and she tells us all about her Heart Warrior Jack.  Brita's new website is www.happyheartmama.com! 

Sign up to be notified when our book Hope and Courage: Real-Life Lessons from the Parents of a Child with Congenital Heart Disease releases at tomandkathansen.com!  Follow us @tomandkathansen on Facebook, Instagram, TikTok and Twitter!  Questions or comments? Reach out to us at [email protected]!  Please rate, review, and subscribe to The Hope and Courage Podcast for CHD Parents anywhere you listen to podcasts!