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On this episode we follow Jess on her journey as we delve into her history. We talk about her ancestors and thank her as she shares her family her journey and her history. FND does take away so much from us. Finding out where you came from especially rediscovery can be surprising and getting back some of who you are. Jess does talk about her ancestors including Uncle Jack Charles and aboriginal ancestors she pays respect for the custodians of the land and there is mention of deceased aboriginal people and members.
Here are a few of Uncle Jacks videos from YouTube that you may be interested to hear:
Uncle Jack Charles Ted Talk
https://youtu.be/WYvJ6CVuOUk
Uncle Jack Charles NAIDOC week meditation from smiling mind
https://youtu.be/fR95CGwNvyQ
Uncle Jack telling our stories from the healing foundation \
https://youtu.be/t6VcAHly5NA
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.neurokid.co.uk/
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND
On this episode we follow Jess on her journey as we delve into her history. We talk about her ancestors and thank her as she shares her family her journey and her history. FND does take away so much from us. Finding out where you came from especially rediscovery can be surprising and getting back some of who you are. Jess does talk about her ancestors including Uncle Jack Charles and aboriginal ancestors she pays respect for the custodians of the land and there is mention of deceased aboriginal people and members.
Here are a few of Uncle Jacks videos from YouTube that you may be interested to hear:
Uncle Jack Charles Ted Talk
https://youtu.be/WYvJ6CVuOUk
Uncle Jack Charles NAIDOC week meditation from smiling mind
https://youtu.be/fR95CGwNvyQ
Uncle Jack telling our stories from the healing foundation \
https://youtu.be/t6VcAHly5NA
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.neurokid.co.uk/
A website for young people and families living with NEAD and neurological symptom
https://fndportal.org/
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is: '
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND