In this second episode of our three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview Matthew Gibbons, who lives with Crohn's Disease. 

Crohn’s disease is a type of inflammatory bowel disease that causes digestive tract inflammation.

Joel and Matthew talk about a variety of topics related to Crohn’s disease, including:

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

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DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

In this first episode of a three-part mini-series focusing on three people with three autoimmune diseases in one family, we interview community member Kevin Gibbons, who has relapsing-remitting multiple sclerosis. 

We discuss Kevin's experience with the condition, including his diagnosis, symptoms, and how he manages his life with MS. We also talk about the importance of patient advocacy, peer support and how sharing stories can help others.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow the HOST:

Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Petra Phoenix has been living with chronic pain for many years. She has seen many doctors, but she has never been given a specific diagnosis. This has made it difficult for her to access the help she needs.

In this show, Petra shares her story of navigating chronic pain without a label. She talks about the challenges she has faced in accessing support, the resources she has found, and how she manages her pain.

Petra's story is a reminder that chronic pain is a real and debilitating condition, even without a formal diagnosis. It is also a reminder that there is hope for those who are living with chronic pain

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: 

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Transverse myelitis (TM) is a neurological disorder characterised by spinal cord inflammation. This inflammation disrupts the normal transmission of nerve signals between the brain and the rest of the body, leading to various and sometimes life-threatening symptoms.

Joining us to share their harrowing experience of Transverse Myelitis is someone who needs little introduction to regulars of our YouTube Channel; Chiara last joined us on World Psoriasis Day to talk about the fantastic work she does as a psoriasis patient advocate and founder of Psoriasis Indonesia.

In this episode, however, we will discuss her terrifying experience of TM, the importance of her family as a support network and how she recently overcame paralysis from a flare. 

A brilliant speaker and wonderful human being, this one is not to be missed.

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Our podcast turns three years old, and with it comes a makeover!

In this short update, Joel explains the reason for the change and the exciting things to come.

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Dr Eleanor Chatburn, Clinical Psychologist, Lecturer, and Ambassador for The British Skin Foundation, joins us at the end of a marathon stream on World Psoriasis Day to discuss the mental health impact and burden of living with a chronic skin condition.

We discuss ways of coping, alternative therapies, such as pain management and talking therapies, and the stigma people with skin conditions face.

Plus, we get valuable insight into the psychology of living with a skin condition straight from the expert!

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Eczema and psoriasis are common skin conditions that can cause significant discomfort and disruption to everyday life. This talk show provides practical tips and advice on managing these conditions and living more comfortably from various lived experience perspectives.

We talk to experts in the field of skincare, as well as people who have lived with eczema and psoriasis, to get their insights and experiences.

Our guests include:

Jo Greenslade, Managing Director of Eczema Clothing, a company that provides super soft, sustainable clothing and sound advice to people with itchy skin and who has personal experience with eczema in her family.

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Eczema Clothing

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

On this episode of the podcast, we are joined by somebody who needs little introduction in the UK access and disability space.

Broadcaster, Journalist, Musician and disability advocate Mik Scarlet joins us to talk about his lifelong relationship with pain, the darker side of living with pain and how he uses humour to cope, the amazing work he does for access, disability and inclusion and touches upon his incredible and varied career.

Please be aware that this episode contains some language and themes (including suicide and painkiller addiction) that may be unsuitable for younger audiences. If any of the topics discussed in this episode have impacted you, please visit: https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines for signposting to support.

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

In this episode, we are joined by the wonderful Ian Taverner, aka Mr Cookfulness.

Ian becomes an instant favourite with our live audience as we talk about adjusting to chronic pain, the mental health impact pain can have and how Ian turned to cooking to cope with his change in circumstances. Following Ian’s incredible journey from the grief of pain and the impact on his family to how he now owns the stage at events like Naidex, this episode is sure to not only inspire you but likely have you reaching for the tissues, as two men talk candidly about their mental health and the burden you can feel with living with a chronic illness.

You can find Ian’s book, ‘Cookfulness: A Therapeutic Approach To Cooking’ on Amazon here: https://amzn.eu/d/a5fri3f

Follow our GUEST:

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.

Tracy lived with Antiphospholipid Syndrome for 17 Years, from her first symptom to diagnosis, resulting in internal damage. 

Over the years, Tracy learned to use art to process and began painting her condition as she saw and experienced it.

Now a patient advocate for Antiphospholipid Syndrome, Invisible Disability and Chronic Pain, Tracy joins us on the Chronic Pain Club Talk Show to talk about this often-overlooked autoimmune condition and how, quite brilliantly, she paints it.

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Join our Online Peer Support Community and Discord server here: ⁠⁠⁠⁠⁠https://discord.com/invite/dUean4vDcX⁠⁠⁠⁠⁠

Watch The Chronic Pain Club Talk Show and these interviews LIVE on ⁠⁠⁠⁠⁠YouTube ⁠⁠⁠⁠⁠and join the conversation!

DISCLAIMER: Our content is for informational purposes only and does not substitute medical advice. The host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others—their stories are their own, and we cannot be held responsible for their views or recommendations. Everyone is unique—what works for one person may not work for another. Always consult your medical professionals.