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A story where carriers, affected, family and friends come together to educate and inspire those living the LHON life!... more
FAQs about The LHONReport - With Host Maria Johnson & Brian Boros:How many episodes does The LHONReport - With Host Maria Johnson & Brian Boros have?The podcast currently has 30 episodes available.
June 23, 201610:LHONReport- Discovering friends and creating our family Maria and Brian talk about what it's like to meet others in the LHON Community. Friendships made over the phone, Skype, or in person, are priceless when it comes to understanding and supporting each other. Every connection made, grows our family.... a rare family we didn't know we had!...more17minPlay
June 01, 20169: international community leadership and initiative Maria and Brian take the leadership conversationworldwide. Reaching members of the LHON community in Spain, Italy, and Germany.Our guests are Andi Gyarnari, Paula Treu, and Pedro Gutiérrez....more52minPlay
May 18, 20168: LHONReport- Losing your license and holding on to memories Maria and Brian take their first attempt at blind story telling. Our unplugged version. Brian explains two stories of wanting and attempting to drive (blind), and holding on to memories of driving years ago. Maria also brings us through a recent scenario of losing her license and wanting to keep the actual Driver’s License....more23minPlay
May 04, 20167:LHON leadership and the 2016 Conference Maria and I share our first cohosted episode. We also share thoughts from Lissa Poincenot, Andy Marks, and Jessica Loomer about leadership and initiative in the LHON community, and the LHON Conference coming up June 17th....more58minPlay
March 07, 20166:LHONReport - With Brian BorosJoe was affected when he was 30 years of age. He loves sports and never wanted to leave them. he didn't let blindness hold him back as he tells his story getting creative with adaptive sports....more42minPlay
March 07, 20165:LHONREport - With Brian BorosMaria was affected in 2013. She is the married mother of two, and a group fitness instructor. She is the co-host of the LHON Live call and is co-hosting the LHONReport....more53minPlay
March 07, 20164:LHONReport - With Brian BorosGeorge is an affected individual who managed to make it through law school in the early 80's. He explains his story and success as an Attorney....more54minPlay
March 07, 20163:LHONReport - With Brian BorosDr. Nichols is Brians Dr. and was the Dr. who originally diagnosed Brian with LHON. ...more36minPlay
March 07, 20162:LHONReport - With Brian BorosLissa is a mom who's son Jeremy lost his vision to LHON. Lissa explains the ups and downs a mother could go through as her son goes through vision loss. She is a huge advocate for the LHON community....more1h 2minPlay
March 07, 20161:LHONReport - With Brian BorosBrian Boros discusses what LHONReport is and his experience with LHON....more28minPlay
FAQs about The LHONReport - With Host Maria Johnson & Brian Boros:How many episodes does The LHONReport - With Host Maria Johnson & Brian Boros have?The podcast currently has 30 episodes available.