This is a deeply personal first episode that sets the foundation for the entire podcast. It's honest, emotional, funny, and gives listeners a real-world insight into what it's actually like to care for a parent with young-onset dementia.
What happens when dementia arrives decades earlier than expected and completely changes the course of your family's life?
In the debut episode of The Long Goodbye, host Graeme Sutherland and his twin sister Kirsten share the deeply personal story of their mum's young-onset dementia diagnosis and the 11-year journey that followed.
From the early warning signs that were mistaken for depression after their father's death, to the long battle for a diagnosis, becoming carers in their early twenties, and eventually moving their mum into a care home, this episode offers an honest, unfiltered account of the realities of dementia.
Alongside the heartbreak, Graeme and Kirsten reflect on the humour, resilience, and unexpected moments of joy that helped them navigate one of life's toughest challenges. This is a conversation about grief, love, family, and learning to say goodbye one small piece at a time.
Key Highlights
- The early symptoms that were repeatedly misdiagnosed as depression.
- The challenges of obtaining a young-onset dementia diagnosis.
- How dementia changed their relationship with their mum.
- Becoming full-time carers in their twenties and balancing work, life, and caregiving.
- The emotional impact of watching a loved one gradually decline.
- Practical advice on power of attorney, care planning, and accessing support.
- Why there is no "textbook" way to care for someone with dementia.
- The importance of finding joy, humour, and meaningful moments throughout the journey.
- Honest discussions about guilt, burnout, resilience, and grief.
- The story behind Graeme's social media platform and advocacy work.
If this episode raises any difficult emotions or concerns for you, please remember that support is available. Whether you're living with dementia, caring for a loved one, or coping with the impact of a diagnosis, you don't have to face it alone. For information, advice, and practical support, contact Alzheimer Scotland's Dementia Helpline on 0808 808 3000 or visit alzscot.org.
If you're struggling with your mental wellbeing, support is also available through Breathing Space on 0800 83 85 87 and Samaritans on 116 123, available 24 hours a day.
Reaching out for help is a sign of strength, and there are people ready to listen and support you
