Lupus is a disease which will impact your quality of life.  Sometimes the impact is not for the better.  Does this mean you should give up trying to live a full life?  In today’s episode, Gwen shares some of the things which impact your quality of life while living with lupus and how to handle them. 

 

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

 Get your lupus mugs!

https://www.thegwenalexander.com/the-online-store

 

How to connect with Gwen:

 Email: [email protected]

YouTube: https://www.youtube.com/@thelupuslivingpodcast

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

 

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

In last weeks episode, Gwen shared her experience with having surgery.  In today’s episode, she shares her recovery journey and the weekly goals she set to help her.  Were there any lupus flares?  Were there any complications?  Take a listen to find out. 

 

Get the book “Living Life with Lupus”:

 

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

How to connect with Gwen:

 Email: [email protected]

YouTube:

https://www.youtube.com/@thelupuslivingpodcast

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

 

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Lupus and having surgery. 

In today’s episode, Gwen shares what has happened in the past seven months of her life.  She talks about the unexpected surgery she had and what led to this. 

 

Get the book “Living Life with Lupus”:

 

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

How to connect with Gwen:

 Email: [email protected]

YouTube:

https://www.youtube.com/@thelupuslivingpodcast

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Is there such a thing s living a normal life?  In today’s episode, Gwen shares more “lupus normal” life activities that people living with lupus deal with.  The lupus journey contunes.  

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

How to connect with Gwen:

Email: [email protected]

YouTube: https://bit.ly/LupusLivingPodcastYouTubeChannel

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

 

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Saying no and setting boundaries can be hard.  When you have lupus, this is a skill we learn to manage our symptoms.  In today’s episode, Gwen shares two books that have helped her deal with being a codependent person.  These books set the foundation to be able to say no when needed and set boundaries in relationships to help her stay as mentally and physically healthy as possible.   

Books mentioned in the podcast:

Codependent No More-How to Stop Controlling Others and Start Caring for Yourself (Melody Beattie)

Love Is A Choice-Recovery for Codependent Relationships

 

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

How to connect with Gwen:

Email: [email protected]

YouTube: https://bit.ly/LupusLivingPodcastYouTubeChannel

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

 

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Living with a chronic illness is hard; its even harder trying to describe what it's like to live with it. In this episode of the Lupus Living Podcast, Gwen shares what listeners wish you knew about living with this disease.

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

How to connect with Gwen:

Email: [email protected]

YouTube: https://bit.ly/LupusLivingPodcastYouTubeChannel

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Romantic relationships can be complicated.  Throw in a chronic illness and it gets more complicated.  In this episode of the podcast, we talk about topics of being single and dating with lupus.  Also, how lupus affects long term romantic relationships. 

 

People living with lupus have the power to be invisible.  Lupus is known as an invisible disease because many of the symptoms can not be seen on the outside.  Many of us living with lupus are also good at hiding our symptoms.    In today’s episode, you’ll find out what we can learn from the X-Men characters how to live with an invisible “superpower.” 

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

How to connect with Gwen:

Email: [email protected]

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way. 

Trigger Warning:  Today’s episode I cover discuss death and estate planning, domestic violence and issues pertaining to end-of-life decisions.  If any of these topics are difficult for you to listen to, I recommend skipping this episode or listen at a time you feel you are ready to deal with these topics. 

In today’s episode, the subject of estate planning will be covered.  Gwen will share what she has learned by being an executor of an estate and from working in the financial industry for over 20 years. 

Article from Lupus.net

 Lupus.net/complication-comorbidities

 

Get the book “Living Life with Lupus”:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

 

How to connect with Gwen:

Email: [email protected]

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way

Are you an active patient or passive patient when it comes to your doctor visits?  Being a passive patient isn’t a negative but it could hamper your doctor in working with you to make decisions about your lupus care.  In today’s episode, Gwen shares the importance of taking an active role in your healthcare. 

Get the book “Living Life with Lupus” on Amazon:

Living Life with Lupus-A Guide to Living A Full Life While Having Lupus.  

How to connect with Gwen:

Email: [email protected]

Website: thegwenalexander.com/lupus-life-podcast

Facebook: facebook.com/lupuslivingpodcast

Instagram: instagram.com/thelupuslivingpodcast

Disclaimer: The information in this podcast is for informational purposes only.  The opinions of the guests are their own.  The host of the podcast is not a medical professional.  You should consult with your doctor or medical professional before you make any changes that may affect your health in any way.