The MacIntyre Podcast

In this edition of the Families Podcast, host Nicola Payne is joined by Lee and Andrew Pearce . Lee and Andrew are brothers who have lived experience of caring for their Mum Valerie who lived with Frontotemporal Dementia( FTD)

The conversation is a honest reflection of the impact this has had on both brothers. Also sharing the supportive network that they have built at Heeley City Farm in Sheffield.

www.heeleyfarm.org.uk Heeley Farm

www.tvfhcfdementia.com/ The Valerie Trust Foundation

www.alzheimersresearchuk.org/ Alzheimer’s Research UK

https://www.tvfhcfdementia.com/films/4594636725  series of films about Lee and Andrews family life through the world of Dementia

In this edition of the Families Podcast, host Nicola Payne is joined by Victoria Lyons. Victoria is a senior consultant admiral nurse working at Dementia UK.

The focus of the conversation is younger onset dementia and the support that Dementia UK and MacIntyre can provide for families.

In this edition of the Families Podcast, host Nicola Payne is joined by Nicki Willis, MacIntyre's Learning Disabilities Nurse who is working closely with our staff teams in Milton Keynes and people supported by those teams.

The focus of the conversation is to talk openly about anxiety - how this can affect people in different ways and how anxiety affects us all on a daily basis. 

In this special edition of MacIntyre's Families Podcast, to mark Celebrating Families Week we look back on the last 12 months.

Host Nicola Payne is joined by Debs Aspland who contributed greatly to MacIntyre's work with families. They spend time sharing highlights and new resources that have been created to support our staff teams and families when working together.

In this podcast we are joined by Paul, Iain and Sui-Ling from MacIntyre's Co-Production working group. We talk about the importance of working together - the benefits as well as reassurance that it can bring to people.

We are also showcasing the Co-Pro song which we hope you enjoy.

Jo Allmond joins MacIntyre Families Podcast for the second time to talk about her mental health and how she manages it in her day to day life. Jo and Nicola share ways they cope with stresses on their mental health. They discuss the importance of talking, also signposting you to support networks along the way.

Resources mentioned in the episode:

•  Matt Haig “Reasons to stay alive” http://www.matthaig.com/books/reasons-to-stay-alive-2/
• https://lifeas-pland.com/
• https://www.nhs.uk/conditions/stress-anxiety-depression/mental-health-helplines/
• https://booksbeyondwords.co.uk/
• https://www.time-to-change.org.uk/
• https://www.mind.org.uk/

In this episode of MacIntyre’s Families Podcast we are joined by Beth Britton. Beth is a content creator, consultant, trainer and mentor, campaigner and speaker specialising in issues affecting older people, health and social care and specifically dementia. Beth’s passion came about after her father’s 19-year journey of living with vascular dementia. Beth wants to improve health outcomes for people and provide knowledge for families, circles of support and staff teams. She works alongside MacIntyre’s Health, Dementia and Wellbeing Team as an external consultant.

• https://bethbritton.com/
• http://d4dementia.blogspot.com
• https://www.macintyrecharity.org/our-expertise/resources/
• https://www.waterstones.com/book/shes-still-my-nan/jo-allmond/jess-hiles/9781781326398
• https://dementiacarers.org.uk/
• https://www.carersuk.org/
• https://www.sibs.org.uk/support-for-adult-siblings/ebook-for-adult-siblings/ https://www.utas.edu.au/wicking/m1d

In this episode of our MacIntyre Families Podcast, Sarah Ormston MacIntyre’s Health, Dementia and Wellbeing Manager talks about the NHS Anticipatory Care Calendar.

MacIntyre is committed to improving health outcomes for people with a learning disability and reducing inequalities that exist in our communities and society. We are doing several things within MacIntyre to achieve this, but one way we are doing this was to introduce and use The NHS’s Anticipatory Care Calendar (Health Calendar) which provides an innovative approach to assessing health on a daily basis and is designed to alert social care staff to changes (even the most subtle) noticed in a person’s health. The calendar also provides clear directions about accessing care. We have taken a ‘whole organisational approach’ to successfully empower our social care staff to develop a high standard of health record keeping, monitor health changes and ensuring people access NHS Screening Programmes and Primary Care services.

We want to bring the Anticipatory Care Calendar to life, raise awareness of this great resource and to share with you the benefits it brings people.

In this episode we talk to Lorraine Devereux, MacIntyre’s Events & Corporate Fundraiser.

Lorraine’s role involves working with local communities, staff, people we support and their families as well as with local businesses.

She told us about how MacIntyre has been supporting people and their families through the lockdown and the experience of isolation. A huge part of this work involved technology, which is often not covered by the costs of care and support.

In the latest episode we talk to Carly Morrissey, MacIntyre’s Transition Co-ordinator.

Carly’s role involves working with families of people who move from Assessment and Treatment Units back to their communities and to MacIntyre support. Understanding the needs of the family and clear communication of the staff team with the family are crucial parts of any good transition from a long stay institution. By connecting everyone in the circle of support, Carly makes sure that the person remains at the centre of the transition.

Link to resources mentioned in the episode https://paradigm-uk.org/what-we-do/reach-support-for-living/