Moira Ermentrout was diagnosed with a rare disease when she was born. The six-year-old's list of medical problems is long and complex: she can't breathe on her own, walk, or talk, and she requires at-home assistance 24 hours a day. Factor in doctors appointments, occasional emergency visits, and equipment, the cost of Moira’s care can be crippling on her parents. Moira’s family now faces serious cutbacks to the critical medical care she needs to stay alive—as do thousands of children like Moira around the country, caught in the midst of state-by-state rollbacks. This week, we take a look at one family's fight against a healthcare system that is failing some of the most vulnerable among us.