ABCs of Disability Planning

The Margaret Hackett Family Program in CNS Congenital Anomalies


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Judie Holleman, APRM, PCNP-BC, CPNP-AC, CCRN, is a Nurse Practitioner for the Margaret Hackett Family Program. During this interview, we explore what the Margaret Hackett Family Program (MHFP) does and how families can advocate for themselves. I feel it's important to stress this program is available to ANYONE from ANYWHERE in the country. 


Through a generous donation from the Margaret Hackett Family Center, the Margaret Hackett Family Program (MHFP) is available to help patients and families with CNS congenital anomalies navigate UChicago Medicine’s resources and establish collaborative communication between patients and their providers. The MHFP aims to provide well-rounded, compassionate patient care, resources in support of the community and education for patients and their families, and steps in advancing the research and recognition of CNS congenital anomalies.


Here's how you can connect with MHFP

Website: https://mhfcp.uchicago.edu/

Phone: 773-795-0622


Link to my interview with Amanda Garzon, COO of the Hydrocephalus Association - https://anchor.fm/abcs-disability-planning/episodes/22-Hydrocephalus-Association-with-Amanda-Garzon-e19cpbd


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