The MiaThrives Podcast

Melissa and Jill use their time during social distancing to enjoy an amazing conversation with Shane.   An amazing family man who's career as a firefighter was something he dreamed of, worked for and that challenges his EB daily.  

https://miathrives.org/

Nisha shares her story of accepting her EB, announcing her EB and becoming an advocate for Rare Disease.  An incredible woman with a very full life who is finding her voice and helping others to find theirs as well! 

https://everylifefoundation.org/

https://rareadvocates.org/rdw-2/

https://www.youtube.com/watch?v=I00QH1OwLNE&feature=youtu.be

Melissa, Jill and Ryan discuss his incredible event, the annual Bella's Ball in support of DEBRA Canada’s programs and services assisting families with Epidermolysis Bullosa.  His daughter Raquel was given a sitski through the DEBRA fund a butterfly program which allows her to ski and race with her family.  

https://www.debracanada.org/2020-bellas-ball-broomball-open

You cannot miss this episode! Mark joins Melissa and Jill to talk about EB Simplex, Athletes4EB, mental health, a purpose driven life and finding your way.  

Sarah spends time with Melissa and Jill talking about her busy days, her fur babies and living a purposeful life with JEB.   There is a lot of talk about beloved and very special pets in this episode.  You don't want to miss this!   

We are thrilled to have the chance to talk with one of our very favourite community members.  Ed has a heart as big as his incredible talent and we can't wait for you to meet him and hear his story.  

Melissa and Jill recap the last week at MiaThrives. With part of the MiaThrives team in London at the EB World Congress and Jill back at home it was a fun, informative, and busy time, and Jill even attempted a cartwheel! 

Melissa and Jill are so excited to be joined by Novelette, a true mentor, leader and thinker in the EB community.  An unforgettable discussion about life with RDEB, the joy, the pain, the everyday "stuff" and how we can best support each other! You don't want to miss this! 

MiaThrives community member,  EB warrior, incredible husband and father and amazing tattoo Artist Chris joins Melissa and Jill to discuss his family's journey with EB!