In this episode, Megan and Ashley continue to talk about grief. Specifically - grieving the life you had planned before your child was diagnosed with a rare disease. While there is so much to be thankful for, parents still have to come to terms with the reality that the life they had imagined is forever changed.

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Caring for children with rare diseases can be a 24/7 job that is often stressful and challenging for parents. Megan and Ashley share their perspectives on the importance of self-care for the parents and caregivers of special needs and medically fragile children.

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

In this episode Ashley talks to Megan about the recent loss of her sister-in-law Jen. Jen and Ashley's sisterJamila have two young children together. Ashley describes how the family is dealing with this tragic loss and how people handle grief in different ways.

Megan and Ashley are back after a little break! A quick update about what's been going on in their lives. Happy New Year!

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Megan and Ashley have a great talk with April, who was diagnosed as an adult with a mitochondrial disease. She is a true Mito warrior and is currently writing her memoir. Find out more: https://www.facebook.com/chronicallyapril and https://aarguin.wixsite.com/website

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Ashley and Megan talk to Sebastien of the Flowering Hope Foundation. His son, Jagger, has Leigh Syndrome, a mitochondrial disease. Sebastien shares his story, and his work in promoting information and research on the use of medical cannabis, which has been instrumental in reducing the number of daily seizures that Jagger suffers.

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Megan and Ashley talk to Rachel from Cecily's Closet. This is an amazing organization that collects and donates equipment and supplies to families of special needs children. It is named in honor of Rachel's daughter Cecily.

Find out more at https://www.cecilyscloset.org/

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Have you registered or donated to the 2022 Mito 5K?! This is the 10th year for this amazing event has raised over $800,000 for mitochondrial disease research! Ashley and Megan give a quick update on this great family event that they help organize and put on each year. Find out more at https://p2p.onecause.com/mito5k

This is a podcast for families and friends of children and adults with Mitochondrial Disease and other rare diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Ashley and Megan talk to Ashley's sister, Jamila! She discusses her role with the WorkAbility program in the San Diego Community College District. This amazing program provides vocational assistance and services to adults with disabilities looking to obtain employment during and after their education.

"WorkAbility III teaches students the skills that will help them transition to meaningful careers and realize their potential." Find out more: https://www.sdccd.edu/about/departments-and-offices/student-services-department/dsps/workability/

A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com

Happy New Year! Megan and Ashley talk to Ryan and Sam who have an amazing lifelong friendship. Ryan is from Extreme Motus, a company that makes all-terrain wheelchairs. Ryan has taken his best friend Sam, who has cerebral palsy, on many off-road adventures with his "X3" all-terrain chair - they share their adventures frequently on Youtube, and Instagram and Facebook. Megan's son Troy also has an X3 and loves it! Enjoy!

Follow Extreme Motus:

https://www.youtube.com/c/ExtremeMotus

http://extrememotus.com

https://www.instagram.com/extrememotus/

A podcast for families and friends of children and adults with Mitochondrial Diseases. Two moms of Mito kids sharing support and resources and building community.

Also available on Apple, Google, Spotify and YouTube.

http://mitopodcast.com