Manx mums, Natassja Chadwick and Kelly Quaye, talk together about what it's like to raise young children with rare genetic disorders - Natassja on the island, and Kelly in Boston. They've come together to create an online community for patients and caregivers of rare genetic disorders on the island called 'Isle of Man RARE'. Managing a rare disorder can be lonely and isolating, but their hope is to provide comfort to others by building a supportive island-based network. Join their Facebook group here: https://www.facebook.com/groups/IsleOfManRARE/