In this episode, we interview two people whose children are moving forward in their lives. Melissa Street's son Jesse is transitioning into a typical classroom, and Carolyn Jackson's two daughters are planning life after high school.

What is self-regulation and how do we modify it for Fragile X?

Join the NFXF's Robert Miller and Jayne Dixon Weber as they interview LINKS Leader/Parent Laureen Majeske and Developmental FX's Tracy Stackhouse and Sarah "Mouse" Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.

Note: We apologize for some technical difficulties throughout much of this Podcast. We promise that we are doing our best to find a good way to record our calls so that it is much clearer and has less echo. Please bear with us as we get used to these new technologies!

Supplementary Materials:
PDF of Powerpoint Presentation (download)

This presentation is designed to give participants the skills and confidence to present the topic of FXS to their child’s classmates. Reaching out to students is a great way to provide a personal understanding of Fragile X along with facts about what is Fragile X. This understanding of fragile x and disabilities in general will help foster friendships and compassion.

Holly Roos is the mother of 2 children, Parker & Allison both affected by Fragile X Syndrome. She is the founder and president of the Central IL Fragile X Resource Group and Board member of Advocates for Access in Peoria Heights, Illinois. In 2007 Holly was the winner of WEEK's 25 women in Leadership for her work in Fragile X. The National Fragile X Foundation recognized Holly’s outstanding contributions to the FX Community with the Education and Awareness Award at the 11th International Fragile X Conference.

Supplementary Material
PDF of Powerpoint Presentation (download)

Learn about Sensory Integration with Tracy Stackhouse, MA, OTR, and Sarah “Mouse” Scharfenaker, MA, CCC-SLP. They are co-founders and directors of Developmental Fragile X Resource Center in Denver, Colorado.