Welcome to The Nerve, a podcast dedicated to exploring issues related to neuropathic facial pain. Hosted by Brandi Underwood, the FPA's Manager of Development, Research, and Advocacy, this episode discusses the power of advocacy and features an engaging conversation with Anna Williams, a patient advocate.

Anna shares her journey from living with facial pain to becoming an active leader in the advocacy community. Together, Brandi and Anna discuss their experience joining over 250 volunteer advocates from across the country on Capitol Hill in support of common-sense legislative priorities as part of the Alliance for Headache Disorders Advocacy & The Headache Alliance's Headache on the Hill.

Join us as we explore Anna's journey to advocacy and the critical issues facing those with facial pain, offering insights into the essential role that personal stories and advocacy play in bringing about meaningful change.

You can learn more about how to take action on the legislative priorities discussed during this webinar by visiting this link: https://forms.allianceforheadacheadvocacy.org/a/take-action-support-headache-hill-2025-legislative-agenda

You can also learn more about the 2025 FPA In-Person Conference on  June 7-8, 2025 in Minneapolis Minnesota and register today by visiting www.FacePain.org.  

Welcome to The Nerve, a podcast brought to you by the Facial Pain Association, dedicated to exploring all aspects of neuropathic facial pain. In this episode, host Brandi Underwood introduces a panel of experts from Noema Pharma who discuss the latest advancements in treating trigeminal neuralgia through the Libra study. Learn about the innovative trial design, patient involvement, and the investigational medication, NOE-101. The discussion delves into patient experiences and the collaborative efforts necessary to bring new hope and effective treatments to those suffering from facial pain.

This episode also guides listeners on how to participate in the trial and emphasizes the importance of patient-centered research. For more information and resources, visit FacePain.org.

For a deeper dive into the study, you can watch the full webinar, which includes a Q&A session with audience questions answered by the experts at https://youtu.be/kkpBrLtvzA8?

The Facial Pain Association (FPA) is enthusiastic about medical research and encourages those with neuropathic facial pain, including trigeminal neuralgia, and related healthcare conditions to consider participation. It is important to note, however, that the FPA is not offering, nor is it qualified to offer, a scientific or medical endorsement of any Institutional Review Board (IRB) approved patient study.

An IRB is a committee established to review and approve research involving human subjects. The purpose of the IRB is to ensure that all human subject research is conducted in accordance with all federal, institutional, and ethical guidelines. All studies and trials listed have IRB or Ethics Committee approval where relevant. The study's safety and scientific validity is the sole responsibility of the study sponsors and investigators. Patients should use the contact information provided to contact the research organization for more information.

Welcome to The Nerve – It’s a Pain in the Face. A podcast dedicated to covering all topics relevant to neuropathic facial pain. Hosted by the Facial Pain Association, our mission is to provide a platform that informs, empowers, and connects individuals within the facial pain community. Whether you are a person living with facial pain, a caregiver, or a healthcare professional, join us as we delve into the world of neuropathic facial pain.

"The Nerve" is not just a podcast—it's a lifeline for those affected by neuropathic facial pain. We are here to meet you where you are, offering a compassionate and informative space to navigate the challenges and triumphs of living with facial pain. You will hear the stories of people living with these conditions, including young patients. You will learn about the latest treatment developments and research from experts in the field. You will add more tools to your toolbox as we face facial pain together.