In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. Listen now!

Additional PPGL resources can be found here: www.lacnets.org/pheo-para-resources

For more information, visit NCF.net.

How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology?  NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. Listen now! 

For more information, visit NCF.net.

How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? What is the patient experience with traveling after PRRT? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT. Listen now! 

For more information, visit NCF.net.

Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression?  NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT.  Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. Listen now! 

Be sure to listen to Episode 8: PRRT (Part One) with Administrative Nurse Lindy Gardner of UCLA Health. 

For more information, visit NCF.net.

Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. Listen now!
 
(PRRT Part Two with Nuclear Medicine Physician Dr. Martin Auerbach will be released next month. Stay tuned!)

For more information, visit NCF.net.

Confused about scans? NET expert Dr Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. Listen now!

For more information, visit NCF.net.

How do NET experts decide what treatments are right for you? How do I learn about current clinical trials?  In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. Listen now!

For more information, visit NCF.net.

What are the current treatment options for NETs? How do I know what treatments I should be on?  In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers ten common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. Listen now!

For more information, visit NCF.net.

In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi, the LACNETS Founder, whose vision and dedication inspires us all. Listen now!

For more information, visit NCF.net.

Newly diagnosed? Or need to brush up on your NET basics? Medical oncologist Dr. Andrew Hendifar addresses 10 common questions including labs, scans, genetic testing, and prognosis. Listen now! 

For more information, visit NCF.net.