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This week's episode is with Matthew Horsnell, a dedicated advocate and father of 3 with Type 1 Narcolepsy or Narcolepsy with Cataplexy. He is also a researcher and has co-authored 3 papers and is the lead author of 1 other! During our conversation, we talk about the changes Matthew has made to accommodate Type 1 Narcolepsy, the importance of legislative advocacy, how social media is affecting the portrayal of narcolepsy, and how we all can make a difference to raise awareness for narcolepsy and help raise government funding for sleep research. We also touch on his research on narcolepsy and how interested individuals can get involved with narcolepsy research! 

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts! 

Follow me on Instagram- @neurologicaldisorderpodcast 

Email me at- [email protected] 

Links Matthew Mentioned:  

• https://project-sleep.com/category/narcolepsy-nerd-alert/ 
• https://www.wakeupnarcolepsy.org/
• https://www.hypersomniafoundation.org/

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This week's episode is with Jennifer Trujillo, an inspiring woman and warrior of Stiff-Person Syndrome. She loves to sing, spend time with her family, and was also featured in Céline Dion's music video! In this interview, we talk about Jennifer's long and terrible experiences with the US Medical System, the necessity of research and advocacy for Stiff-Person Syndrome, the benefits of Alternative medicine, and ways we, as a community, can help people with Stiff-Person Syndrome feel more comfortable and safe. Her story is truly heartbreaking and inspiring, as she details how neighbors and even caregivers have made her feel inadequate. However, as a trigger warning, today's episode covers some heavy topics such as suicide and mentions of specific addictive drugs. 

 Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast

Email me at- [email protected]

Follow Jennifer on Instagram- @jentru_mom6_sps_warrior

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This week's interview is with Jess Clough, from Australia! She has Functional Neurological Disorder, which affects how the nervous system sends and receives messages. In this interview, we talk about the stigma that Freudian psychology has brought to FND, the importance of modern perspectives in medicine, and a term I have never heard before--medical gaslighting. 

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- [email protected]
Follow Jess on Instagram- @functionallyjess
Website Jess mentioned for FND- https://neurosymptoms.org/en/

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This week's interview is with an amazing woman named Hasitha Illa who is a fighter of Friedreich's Ataxia. She is also an avid blogger and passionate writer who has just released a children's book on disabilities! In this episode, we talk about Hasitha's experience with FA, the importance of inclusivity, the value of advocating for neurological conditions, and much more.

Be sure to subscribe to The Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts! Episodes will be posted biweekly.
Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- [email protected]
Follow Hasitha Illa on Instagram- @lifewithhasi
Website Hasitha mentioned for FA- https://www.curefa.org/

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This is some background as to what this podcast will be about

If you have any questions or concerns, feel free to reach out to me through [email protected]!