The PaedsHub Pod

The PaedsHub Pod

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The PaedsHub Pod episodes

  • Living with Cancer: Patient Perspectives

    In this episode Dr Lorna Hack speaks to Dr Priyank Rajan, a clinical fellow working in Oncology & Haematology, about the lived experience of a cancer diagnosis.

    Resources discussed:

    -Under 16s cancer experiencesurvey

    (https://under16cancerexperiencesurvey.co.uk/visual-summaries)

    - Patient and parent perspectives on paediatric cancer multidisciplinary team working and national advisory panels in the UK: a qualitative research study

    (https://adc.bmj.com/content/109/4/321)


    Charities:

    -Teenage Cancer Trust

    -Young Lives vs Cancer

    Dr Rajan’s book recommendations: ‘The Emperor of All Maladies’ by Siddhartha Mukherjee and ‘The Surrender Experiment’ by Michael Singer.

    Please let us know your thoughts. Your feedback will help us keep the podcast relevant to you. Perhaps you’d like to suggest an article for a future episode? If you are interested in contributing leave us a comment!

    39 min
  • Adverse Childhood Experiences

    In this episode, Dr Felicity Cooksey speaks to Dr Kate McCann about adverse childhood experiences. Dr Kate McCann is a community child health consultant and member of the Trauma Informed Strategy Group in Somerset.

    We discuss how adverse childhood experiences may impact a child’s development and the importance of recognising and responding to childhood trauma.

    Recommended Resources:

    TED Talks

    • Dr Nadine Burke Harris – TED talk: How childhood trauma affects health across a lifetime.

    • Molly Wright- TED talk: How Every Child Can Thrive by Five

    Articles

    • Felitti VJ, Anda RF, Nordenberg D, Williamson DF, Spitz AM, Edwards V, Koss MP, Marks JS. Relationship of childhood abuse and household dysfunction to many of the leading causes of death in adults. The Adverse Childhood Experiences (ACE) Study. Am J Prev Med. 1998 May;14(4):245-58.

    • Nelson CA, Scott RD, Bhutta ZA, Harris NB, Danese A, Samara M. Adversity in childhood is linked to mental and physical health throughout life. BMJ. 2020 Oct 28;371:m3048.

    Books

    • The Body Keeps the Score by Bessel van der Kolk

    • The Deepest Well by Dr Nadine Burke Harris

    • Goodnight Mister Tom by Michelle Magorian

    • The Secret Garden by Frances Hodgson Burnet

    Websites

    • The Bucharest Early Intervention Project. Available at https://www.bucharestearlyinterventionproject.org/

    • Center on the Developing Child at Harvard University https://developingchild.harvard.edu/

    • EHCAP- Mindful Emotion Coaching https://mindfulemotioncoaching.co.uk/

    • UK trauma council https://uktraumacouncil.org/

    • Oxford Brain Story https://www.oxfordbrainstory.org/


    48 min
  • The Paedshub Pod Annual Round Up

    This episode, the Paedshub Pod team got together for our annual roundup. Felicity Cooksey, Leila Ellis, Lorna Hack and Paulina Connolly discuss 12 articles that we enjoyed over the past year from ADC. Happy New Year!

     

    Articles & related resources:

    1. Barriers to initiating and implementing palliative and end of life care for children with life-limiting conditions- A mixed methods study in a UK Children’s Hospital.

    https://adc.bmj.com/content/107/Suppl_2/A299.1

     

    2. Pharmacokinetic and pharmacodynamic data from the NEOLEV1 and NEOLEV2 studies. 

    https://adc.bmj.com/content/109/10/854

     

    3. Family poverty, neighbourhood greenspace and perinatal outcomes.

    https://adc.bmj.com/content/109/12/1017

     

    4. Near-fatal and fatal asthma and air pollution: are we missing an opportunity to ask key questions?

    https://adc.bmj.com/content/109/8/616

     

    5. Fifteen-minute consultation: The prepubescent gender-diverse child: how to answer parents’ questions. 

    https://ep.bmj.com/content/109/3/106


    Additional resources:

    https://cass.independent-review.uk/home/publications/final-report/

     

    6. Children born to subfertile couples, how are they doing? Evidence from research.

    https://adc.bmj.com/content/early/2024/04/07/archdischild-2023-326023

     

    7. Delivery room dextrose gel for preterm hypoglycaemia (the GEHPPI study): a randomised placebo-controlled trial.

    https://fn.bmj.com/content/early/2024/11/17/archdischild-2024-327313

     

    8. Fifteen-minute consultation: Group A streptococcal pharyngitis, diagnosis and treatment in children.

    https://ep.bmj.com/content/109/5/210


    Additional resources:

    FeverPAIN score: https://www.mdcalc.com/calc/3316/feverpain-score-strep-pharyngitis#evidence

     

    9. Nasogastric tube feeding under physical restraint of children and young people with mental disorders: a comprehensive audit and case series across paediatric wards in England. https://adc.bmj.com/content/109/8/649

     

    10. Recognition, prevention and management of ‘digital harm’. 

    https://ep.bmj.com/content/109/3/120


    Additional resources:

    • https://www.ceopeducation.co.uk/
    • https://www.childline.org.uk/info-advice/bullying-abuse-safety/online-mobile-safety/report-remove/?gclsrc=aw.ds&gad_source=1&gclsrc=ds
    • https://www.parentalminds.org.uk/wp-content/uploads/2023/12/LMHS-Thrive-Directory-181223.pdf
    • https://learninghub.nhs.uk/Catalogue/Internet-safety-suicide-self-harm
    • https://mindedforfamilies.org.uk/Content/parenting_in_a_digital_world/#/id/5e30acc07c501d4bd0554ad5
    • https://www.nspcc.org.uk/keeping-children-safe/online-safety/
    • https://www.childrenscommissioner.gov.uk/digital/5-a-day/
    • https://uniquevoice.org/online-safety/
    •  

      11. Achieved oxygen saturations and risk for bronchopulmonary dysplasia with pulmonary hypertension in preterm infants.

      https://adc.bmj.com/content/109/11/941

       

      12. Fifteen-minute consultation: Empowering children, young people and families through shared decision-making: a practical guide. 

      https://ep.bmj.com/content/109/6/264

       

       

      Our entertainment recommendations:

      Books:

      • Midnight's children by Salman Rushdie
      • The Salt Path by Raynor Winn
      • Lessons in Chemistry by Bonnie Garmus
      • Comic: The Weight of Expectation ⁠https://actwithlove.co.uk/woe⁠

      • Films & Series:

        • Squid Games (Netflix)
        • Film: The Green Book (2018)
        • 1 hr 4 min
        • Innovation in Spinal Muscular Atrophy treatment

          In this episode Dr Lorna Hack speaks to Dr Anirban Majumdar about Spinal Muscular Atrophy, and the remarkable advances made in managing this condition in the twenty-first century.

          Dr Majumdar is a Consultant Paediatric Neurologist at the Bristol Royal Hospital for Children, and delivers the regional Neuromuscular Service.


          We discuss: the genetic basis of SMA, the targets of disease modifying treatments, the pros and cons that guide treatment choice, and monitoring of treatment efficacy.


          Article: https://adc.bmj.com/content/108/Suppl_2/A199


          Dr Majumdar’s book recommendations: ‘Yellowface’ by R. F. Kuang and ‘The Spanish Civil War’ by Antony Beevor.

          41 min
        • Idiopathic Intracranial Hypertension

          In this episode, Dr Felicity Cooksey talks with Dr Marie Monaghan about idiopathic intracranial hypertension. Dr Monaghan is a general paediatric consultant with

          a specialist interest in epilepsy, based at Bristol Royal Hospital for Children. She co-authored a paper titled ‘Consensus recommendations for the assessment and management of idiopathic intracranial hypertension in children and young people’, which was published in Archives of Disease in Childhood.


          Dr Monaghan discusses her experiences of working abroad, why cases of idiopathic intracranial hypertension are predicted to rise and how to approach a suspected

          case.


          Link to the full article: ⁠Consensus recommendations for the assessment and management of idiopathic intracranial hypertension in children and young people | Archives of Disease in Childhood (bmj.com)⁠

          35 min
        • Psychosocial Support for Childhood Cancer Survivors

          In this episode, Dr Leila Ellis welcomes Nicola O'Donnell to the podcast to discuss psychosocial support for childhood cancer survivors. Nicola is a Health Psychologist and is completing the final year of a PhD with the University of York exploring psychoeducation interventions for young people with retinoblastoma funded by the Childhood Eye Cancer Trust (CHECT).


          Resources:

          • An overview of Acceptance and Commitment Therapy⁠
            • ⁠An overview of Compassion Focused Therapy⁠

            • Charities:

              • ⁠The Teenage and Young Adult Cancer Trust (TYAC)⁠: TYAC is part of the Royal Marsden Cancer Charity and offers specialised support for teenagers and young adults with cancer, including counselling 
                • Lennox Children’s Cancer Fund: offer family-wide
                • support including a 24-hour phone line, local community support in your area, and grants for professional counselling
                  • ⁠Place2Be⁠: offer children and young people’s mental
                  • health support at school
                    • Maggie's Centres⁠: Maggie's Centres have have
                    • several locations across the UK and provide free
                      practical, emotional, and social support to people with cancer, including children and teenagers
                      • Rainbow Trust⁠: offer whole family support including a
                      • space to listen to family’s fears and anxieties, helping to explain illnesses, diagnoses and treatments, support
                        through grief and bereavement
                        • ⁠Winston’s Wish⁠: helps children,
                        • teenagers and young adults when experiencing grief
                          • ⁠Together for Short Lives⁠: provide a phone line for any
                          • parent, carer or professional who looks after or knows a child or young person who is expected
                            to have a shorter life expectancy
                            • ⁠Child Bereavement UK⁠: support families when a child
                            • grieves or when a child dies. Including a helpline, or face-to-face support in certain locations


                              Support lines:

                              • IAM (Teenage Cancer Trust)⁠: emotional and clinical
                              • support tool for young people who’ve had cancer
                                • ⁠Connect (Teenage Cancer Trust)⁠: supportive online
                                • community for young people going through or recovering from cancer
                                  • Young Lives vs. Cancer: phone 0300 303 5220 or email [email protected]
                                    • Macmillan: call 0808 808 00 00 or chat online
                                      • Child Death Helpline: phone 0800 282 986 for free telephone service for anyone affected by the death of a child
                                        • Young Minds: text ‘YM’ to
                                        • 85258 for free 24/7 support
                                          • The Mix – Crisis Messenger: text THEMIX to 85258 for free 24/7 crisis support across the UK
                                            • Samaritans: phone 116 123 or email [email protected] for 24/7 free support
                                              • Shout: text ‘SHOUT’ to 85258
                                              • for free 24/7 support
                                                • NHS psychological therapies (IAPT) (18+): self-referral for free talking therapies

                                                • Book recommendation:

                                                  • A Heart That Works by Rob Delaney

                                                  • Please let us know what you thought of this episode. Your

                                                    feedback will help us keep the podcast relevant to you. Let us know what you think about the format, length, choice of articles or anything else. Perhaps you’d like to suggest an article for a future episode? Here are your options for getting in touch:

                                                    • Leave a comment below
                                                    • Use our feedback form (which allows you to give anonymous feedback)
                                                    • Email us at [email protected]
                                                    • 35 min
                                                    • The growing issue of obesity

                                                      In this episode Dr Lorna Hack speaks to Dr Dinesh Giri about obesity, it's growing prevalence and associated complications. Tertiary management for obese children is discussed, including the increasing use of medication.

                                                      Dr Giri is a Paediatric Endocrine Consultant at the Bristol Royal Hospital for Children, and is part of the team who run the weight management service.


                                                      Dr Giri's book recommendation: 'The Secret' by Rhonda Byrne


                                                      Articles discussed:

                                                      Gap in obesity monitoring in preschool children:

                                                      https://adc.bmj.com/content/108/Suppl_2/A64.2


                                                      Review of paediatric fatty liver disease:

                                                      https://adc.bmj.com/content/106/1/3


                                                      Waist-to-height-ratio superior to BMI in identifying obese children:

                                                      https://www.nature.com/articles/s41390-024-03112-8


                                                      Resources for families:


                                                      https://beezeebodies.com/resources/


                                                      Thank you for listening!

                                                      37 min
                                                    • Use of Infliximab in Kawasaki Disease

                                                      In this episode Dr Paulina Connolly welcomes Professor Ramanan to the Podcast. Professor Ramanan is a Consultant Paediatric Rheumatologist at Bristol Royal Hospital for Children, and Associate Editor of Archives of Disease in Childhood. They explore the evidence behind current treatment strategies for Kawasaki disease, reviewing the recent paper from Archives titled 'Infliximab for intensification of primary therapy for patients with Kawasaki disease and coronary artery aneurysms at diagnosis'


                                                      The full link to the article can be found below:


                                                      https://adc.bmj.com/content/108/10/833


                                                      Prof Ramanan also references the recent editorial in ADC 'Thinking beyond intravenous immunoglobulin for Kawasaki disease' which provides an overview of the current adjunctive treatments and supporting evidence:

                                                      https://adc.bmj.com/content/108/10/781

                                                      33 min
                                                    • Nutritional Blindness

                                                      In this episode, Dr Felicity Cooksey talks with Dr Denize Atan about nutritional blindness. Dr Atan is an Associate Professor and an Honorary Consultant in Neuro-ophthalmology at the Bristol Eye Hospital. She co-authored a review published in Archives of Disease in Childhood titled ‘Nutritional blindness from avoidant-restrictive food intake disorder- recommendations for the early diagnosis and multidisciplinary management of children at risk from restrictive eating.’

                                                      The link to the full article can be found below:

                                                      https://adc.bmj.com/content/early/2023/07/05/archdischild-2022-325189

                                                      Dr Atan discusses the importance of asking about diet, why growth measurements can lead to false reassurance and the traffic light algorithm they propose for managing patients with ARFID who are at risk of visual and other neurological complications.

                                                      Dr Atan’s book recommendation was ‘Lessons in Chemistry’ by Bonnie Garmus.

                                                      23 min
                                                    • Paedshub Christmas Special

                                                      This episode the Paedshub Pod team Felicity Cooksey, Leila Ellis and Paulina Connolly discuss 12 articles that we enjoyed over the past year from ADC. Happy Christmas!

                                                       

                                                      Leila's recommendations from Fetal and Neonatal:

                                                       

                                                      Marshall A, Ladlow OJ, Bannink C, et al. Apnoea-triggered increase in fraction of inspired oxygen in preterm infants: a randomised cross-over study Archives of Disease in Childhood - Fetal and Neonatal Edition.

                                                      https://fn.bmj.com/content/early/2023/08/28/archdischild-2023-325849

                                                       

                                                      Cromb D, Hall M, Story L, et al. Clinical value of placental examination for paediatricians. Archives of Disease in Childhood - Fetal and Neonatal Edition

                                                      https://fn.bmj.com/content/early/2023/09/26/archdischild-2023-325674

                                                       

                                                      Suonpera E, Lanceley A, Ni Y, et al. Parenting stress and health-related quality of life among parents of extremely preterm born early adolescents in England: a cross-sectional study. Archives of Disease in Childhood - Fetal and Neonatal Edition

                                                      https://fn.bmj.com/content/early/2023/10/24/archdischild-2023-325429

                                                       

                                                      van Hasselt TJ, Gale C, Battersby C, et al. Paediatric intensive care admissions of preterm children born <32 weeks gestation: a national retrospective cohort study using data linkage. Archives of Disease in Childhood - Fetal and Neonatal Edition.

                                                      https://fn.bmj.com/content/early/2023/11/03/archdischild-2023-325970

                                                       

                                                      Felicity's recommendations from Archives:

                                                       

                                                      Byrne S, Sledge H, Franklin R on behalf of the CORAL Study group, et al. Social communication skill attainment in babies born during the COVID-19 pandemic: a birth cohort study Archives of Disease in Childhood 2023;108:20-24

                                                      https://adc.bmj.com/content/108/1/20

                                                       

                                                      Pereyra-Elías R, Carson C, Quigley MA. Association between breastfeeding duration and educational achievement in England: results from the Millennium Cohort Study Archives of Disease in Childhood 2023;108:665-672.

                                                      https://adc.bmj.com/content/108/8/665

                                                       

                                                      Zhang CX, Quigley MA, Bankhead C, et al. Ethnic differences and inequities in paediatric healthcare utilisation in the UK: a scoping review Archives of Disease in Childhood 2023;108:518-524.

                                                       https://adc.bmj.com/content/108/7/518

                                                       

                                                      Storch-De-Gracia P, Fernández JL, Velasco R, et al. Invasive

                                                      bacterial infection in children with fever and petechial rash in the emergency department: a national prospective observational study. Archives of Disease in Childhood 2023;108:445-450.

                                                      https://adc.bmj.com/content/108/6/445

                                                       

                                                      Paulina's recommendations from Education & Practice:

                                                       

                                                      Abdalhady M, Harrison CM. Early switch of intravenous to oral antibiotic therapy in clinically well neonates with a probable bacterial infection is as effective as a full course of intravenous antibiotics therapy. Archives of Disease in Childhood - Education and Practice 2023;108:290-291.

                                                      https://ep.bmj.com/content/108/4/290

                                                       

                                                      Low A, Blyth FJ. Infants reported for maltreatment had an increased risk of death from medical causes. Archives of Disease in Childhood - Education and Practice 2023;108:142.

                                                      https://ep.bmj.com/content/108/2/142

                                                       

                                                      Barrington J, Polley C, van Heerden C, et al. Parents’ attitudes to medical education on paediatric ward rounds. Archives of Disease in Childhood -Education and Practice 2023;108:134-138.

                                                      https://ep.bmj.com/content/108/2/134

                                                       

                                                      Mulholland M, Glancy C, Sweeney E, et al. An ulcerated lesion in a previously well child. Archives of Disease in Childhood - Education and Practice 2023;108:74-76.

                                                      https://ep.bmj.com/content/108/1/74

                                                       


                                                      Our book recommendations: 


                                                      • The Vanishing Half by Brit Bennett
                                                      • Between the World and Me by Ta-Nehisi Coates
                                                      • When breath becomes air by Paul Kalanithi
                                                      • War Doctor: Surgery on the Front Line by David Nott
                                                      • Thursday Murder club series by Richard Osman (for some light relief)
                                                      • Such a fun age by Kiley Reid
                                                      • Growing pains by Mike Shooter

                                                      • And finally our Podcast recommendations:

                                                        • How to Fail by Elizabeth Day
                                                        • This Podcast Will Kill You by Erin Welsh and Erin Allman Updyke
                                                        • 31 min

                                                        About The PaedsHub Pod

                                                        From the publisher's feed

                                                        An educational podcast created by paediatric trainees in the Southwest. Featuring reviews of articles and interviews with authors and specialists.