We kick off the Penn Health-X Podcast with Dr. Fajgenbaum!
Map
4:30 – football at Georgetown, his mother’s illness, and starting AMF
8:45 – getting to Penn Med and being diagnosed with Castleman Disease
13:40 – relapsing, and not being content with the state of research
17:20 – mentors, the orphan disease center, and starting the CDCN with an email
21:00 – getting the MBA and learning to manage a group of researchers
23:30 – learning to negotiate
24:50 – how biomedical research funding needs to change
31:00 – using the CDCN model for other orphan diseases
34:00 – thoughts on high drug prices, right-to-try legislation, and FDA regulation, and off-label use
39:55 – being compared to a Nobel Prize winner, and planning for another potential relapse
43:45 – final thoughts
Links:
LinkedIn Profile
https://www.linkedin.com/in/davidfajgenbaum/
NYTimes Article:
https://www.nytimes.com/2017/02/04/business/his-doctors-were-stumped-then-he-took-over.html
Actively Moving Forward (AMF):
https://healgrief.org/actively-moving-forward/
CDCN Website:
http://www.cdcn.org/
Getting More by Stuart Diamond
https://www.amazon.com/Getting-More-Negotiate-Succeed-Work/dp/0307716902
The Castle Man Image
http://files.www.cdcn.org/3590_SketchWarrior-process-s312x341.jpg