Have you ever wondered about the resilience of the human spirit in the face of chronic illness? Brace yourself as we delve into the captivating story of Kiera Chan, a steadfast advocate for disability rights and women's health who lives with adrenal insufficiency and vascular eagle syndrome. At age 20, Kiera started a health journey that would transform her world. With daily adrenal crises and a relentless pursuit for answers, her courage has been tested repeatedly - but she continues to thrive.

Kiera's life is a testament to the importance of self-advocacy in healthcare. She opens up about her experiences, from feeling minimized by healthcare professionals to the arduous task of finding the right treatment. We explore the overlooked aspects of chronic illness, including its impact on mental health and the significance of having a supportive network. Her story offers hope, inspiration, and practical advice for anyone navigating a similar path, showcasing the need for healthcare reform and patient-centric care.

Then, we venture into her daily routine, offering a glimpse into the role medical devices play in her life. From her cortisol infusion pump to her DEXCOM G6, these tools are crucial in maintaining her health. But it's not just about survival; Kiera’s journey is about redefining what living with a chronic illness means. It's about raising awareness, sharing stories, and inspiring change. So, join us as she provides an intimate, enlightening perspective on life with adrenal insufficiency - a conversation that challenges, informs, and inspires.

https://www.instagram.com/chronically_kiera/

Send us a text

Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.

Let's Get Started - Rare Patient Voice

🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)

Website:
https://myspooniesisters.com/

Discount Codes:

GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off