The Rare Disorder Podcast

In this episode, I interview Tara, who is a fighter of Narcolepsy Type 2. Tara O'Connor is a volunteer EMT and a firefighter. She is also a full time student in the electroneurodiagnostic technology program. Tara is an auntie and a dog mama as well. She lives with Narcolepsy Type 2 - she was officially diagnosed in 2019, but had many symptoms for 20 years before she was diagnosed.

Follow along on her advocacy journey!

Instagram: https://www.instagram.com/sleepygal_96/

Facebook: https://www.facebook.com/tara.ann.9699

In this episode, I chat with Jen Roman, who is a fighter of Idiopathic Intracranial Hypertension. Jen Roman is a 27 year old living with Idiopathic Intracranial Hypertension & Behçets Disease. Instilled with a classic sense of Jersey-grit and a passion for helping others, she was a firefighter/EMT prior to her diagnosis and subsequent disability. After enduring ten brain procedures, Jen utilized her medical knowledge to become an expert, not only on the conditions that impact her, but also the technology that provides critical relief and management to her daily life. She spends most of her time fighting for legislation as a patient advocate, freelance writing, volunteering for multiple organizations, appearing on podcasts, and helping anyone who requires assistance on their medical journey. Jen is also a professional rock vocalist who aspires to bring her unique style and love of performance into her advocacy.

Follow along on her advocacy journey!

Instagram: https://www.instagram.com/kylo_jen_94/