In this episode of The Ride, we discuss the caregivers, spouses and significant others of folks who have a rare disease. Our special guest is Tom Amodio, Sara’s husband and caregiver.

In this episode of The Ride, we discuss how Vasculitis can take a toll on your mental health. The drugs certainly don’t help, and neither does the pain, the inconclusive tests, the ups and downs. Yeah. Our special guest is Dana, a licensed clinical social worker who works with chronically ill patients.

In this episode, we discuss the ubiquitous Vasculitis experience of blood draws and Sara takes a field trip to get her port accessed for blood work. Learn what is like for patients who live with a port.

Ever wish you could re-live your 16th year and revert back to an edgy, mouthy, and pouty kid? Do you ever wonder what you’d look like with a little *extra* weight? In this episode, we will discuss prednisone and dream of a day with more steroid-sparing drugs. Our special guest is Suzanne who will explain Giving Tuesday on December 3rd.

In this episode, we will be looking at the role sinuses play in Vasculitis. It’s kind of a thing. Really. Our special guest is Rosemary from Seattle and she will be discussing her experiences with sinuses and sinus surgery.