Making decisions is something we all do every day, but for many people with intellectual disabilities, having their choices heard and respected has not always been guaranteed. In this episode, we explore the Assisted Decision-Making Act, what it means in practice, and why supported decision-making is about empowering people to lead their own lives - not taking families out of the picture.
Derval is joined by Molly O'Keefe, founder of Positive Pathways and a long-time advocate for family leadership and inclusion. Drawing on both her professional experience and her family's journey, Molly shares practical examples of how people can be supported to make decisions in ways that reflect their own wishes, preferences and relationships.
We also hear from Fiachra O'Connor, who explains the Assisted Decision-Making Act in plain language, addresses common misconceptions, and outlines the practical supports available for people and families.
Together, the conversation highlights that good decision-making starts with relationships, trust and listening, ensuring every person has the opportunity to shape their own life and future.
Key topics:
What the Assisted Decision-Making Act means in practice
Common myths and misunderstandings about the legislation
The important role of families and natural supports
Supporting people to express their will and preferences
Everyday and major life decisions
Practical tools, including communication passports and vision planning
How to access information and support through the Decision Support Service (DSS)
Resources:
Inclusion Ireland Resource: The role of family and supporters in supporting decision-making
2024 DSS Annual Report
Decision Support Service
Decision Making Arrangement Checklists
Decision Making Representative Order
The Natural Authority of Families, Summary; Michael Kendrick
Seven Steps To Self Direction, Building Right Relationships, Resourcing Inclusive Communities
QUOTES
Families need to know that their natural authority is acknowledged, because they're the ones that are there because of love. - Molly O'Keeffe
The starting point is not the removal of families - it's how we can enhance the person's voice through their natural relationships. - Molly O'Keeffe
She is seen as the boss, and people acknowledge her capacity in that role. - Molly O'Keeffe
As a family member, you probably don't even realise that you already know all of these things about how the person communicates. - Fiachra O'Connor
Under the Lunacy Act, there was little to no role for family members at all. This law invites family members in. - Fiachra O'Connor
KEYWORDS
#InclusionIreland #TheRightToOrdinary #AssistedDecisionMaking #ADMA #IntellectualDisability #HumanRights #DecisionSupportService #SelfAdvocacy #Inclusion #DisabilityRights #FamilyLeadership #PositivePathways
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