The Sickle Cell Podcast

The Sickle Cell Podcast

By Sickle Cell 101Education
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The Sickle Cell Podcast episodes

  • Why Sickle Cell? (Feat. London Knight)

    Girl chat! Fashion model and sickle cell warrior London Knight shares how she juggles being a model, advocate and inspiration to others. ๐Ÿ’‹๐Ÿ’ƒ๐Ÿฝ


    You can follow London Knight on Instagram at @LondonKnight_

    22 min
  • Why Sickle Cell? (Feat. The B Strong Group)

    Sponsored by bluebird bioโ€“ A mother's perspective on raising her son diagnosed with sickle cell SC disease. This episode addresses the blessings and the hardships Brenda Greene has experienced as a caregiver. We also discuss discovering their genotypes, tips for newly diagnosed families, and nonprofit organization The B Strong Group's work with blood donation.

    We would like to thank our sponsor bluebird bio. Check out a new website to learn how you can advocate for better sickle cell care. Take some time to check out SparkSickleCellChange.com to learn more and sign up to Be The Spark for Change in Sickle Cell!

    51 min
  • Sickle Cell + Gene Therapy (Feat. Dr. Isaac Odame, MD & Aeon Chintersingh)

    Sickle Cell + Gene Therapy: An Honest and Open Discussion About Gene Therapyย 

    This episode features Aeon Chintersingh, an adult who underwent gene therapy to cure sickle cell disease and Dr. Isaac Odame, a specialist and medical director of Hematology/Oncology at SickKids in Toronto.

    We discuss fertility, chemotherapy, genotypes, the word 'cure' and much more.

    We would like to thank our sponsor Aruvant Sciences, a company focused on developing gene therapies for rare diseases. Aruvant Science has an ongoing clinical trial in sickle cell that is currently enrolling participants. Please go to momentumtrials.com for more information on the clinical trial.ย 

    Aruvant neither owns nor controls this platform and does not have editorial control over content or responsibility for any other information provided.

    1 hr 13 min
  • Why Sickle Cell? (Feat. Halimat Olaniyan)

    Dedicated to all the people living with sickle cell disease (SCD) who wanted to grow up to be a doctor to treat others living with SCD. Halimat Olaniyan is living out this dream. We're chatting about her journey as a second-year med student and as an individual living with sickle cell disease.

    1 hr 2 min
  • Sickle Cell + Taught Me (Sickle Cell Awareness Month 2020)

    We're sharing stories, responses and discussing the theme of this year's Sickle Cell Awareness Month, "Sickle Cell Taught Me..."

    Current event links:

    • Black Blood Matters: https://www.wavy.com/news/health/red-cross-black-blood-matters-for-some-with-sickle-cell-anemia/

      • Sickle Cell Patients Should Have Medical Exemption in the UK: https://sicklecellanemianews.com/2020/08/19/uk-nhs-medical-exemption-petition/

        • Millions of Americans carry the sickle cell trait, many without knowing it. Could they be at risk for severe Covid-19?: https://www.statnews.com/2020/09/03/millions-carry-sickle-cell-trait-could-they-be-at-risk-for-severe-covid19/

          • When Actions Speak Louder Than Words โ€” Racism and Sickle Cell Disease: https://www.nejm.org/doi/full/10.1056/NEJMp2022125
          • 48 min
          • Curing My Sickle Cell Disease and Lupus (Feat. Rhiannon and Scherika Perry)

            A 'Why Sickle Cell' episode featuring Rhiannon and her mother Scherika's inspiring journey to cure Rhiannon's sickle cell disease and lupus. An honest look into what it takes to undergo a bone marrow transplant.

            A huge thank you to Be the Match for sponsoring this episode. For more information about Be the Match, visit: https://bethematch.org/sicklecell

            57 min

          About The Sickle Cell Podcast

          From the publisher's feed

          Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education.