In this episode of the #ThroughTheGenes podcast, hosts Wunmi Bakare and Christelle Salomon engage in a heartfelt conversation with Maite Rodriguez about her daughter Alessia's journey with sickle cell disease and the transformative therapies they pursued.

The discussion covers the emotional and practical challenges of caregiving, the decision to have another child as a potential donor, and the complexities of preparing for a bone marrow transplant.

Maite shares her family's experiences, the support they received, and their hopes for Alessia's future post-transplant, emphasizing the importance of community and open communication throughout their journey.

Don't forget to subscribe and share with someone that needs to hear it. 

To conclude our discussion on the topic "What Happens To The Body In Gene Therapy", our hosts - Wunmi Bakare and Christelle Salomon - sat down with Dr. Elizabeth Krieger, who is a pediatric hematologist-oncologist specializing in bone marrow transplant and cellular therapies. Discover why chemotherapy is carried out for these therapies, the side effects of chemotherapy, and why some protocols require radiation and others do not.

#ThroughTheGenes #TTGS2 #TTGPodcast #GeneTherapy #TTGxBeam #TTGxSynthego #TTGxUCSF #TTGxSCP #SickleCellDisease #TransformativeTherapiesForSickleCell #SickleCellAwareness #SickleCellEducation

In this episode of #ThroughTheGenes, we delve into the transformative role of fetal hemoglobin in treating sickle cell disease. Join hosts - Wunmi Bakare and Christelle Salomon - as they explore groundbreaking gene therapy advancements with Dr. Matt Porteous, Co-founder of Kamau Therapeutics.

Discover how genome editing techniques are being used to reactivate fetal hemoglobin, offering new hope for patients by reducing the severity of sickle cell symptoms. We explore the FDA-approved therapies, Lyfgenia and Casgevy, and discuss the transformative potential these treatments hold. Discover the science behind these therapies, the journey from concept to approval, and the impact on patients' lives. Tune in to learn how gene therapy is reshaping the future for those living with sickle cell disease.

In this episode of #ThroughTheGenes, we delve into the transformative role of fetal hemoglobin in treating sickle cell disease. Join hosts - Wunmi Bakare and Christelle Salomon - as they explore groundbreaking gene therapy advancements with Dr. Matt Porteous, Co-founder of Kamau Therapeutics. Discover how genome editing techniques are being used to reactivate fetal hemoglobin, offering new hope for patients by reducing the severity of sickle cell symptoms. We explore the FDA-approved therapies, Lyfgenia and Casgevy, and discuss the transformative potential these treatments hold. Discover the science behind these therapies, the journey from concept to approval, and the impact on patients' lives. Tune in to learn how gene therapy is reshaping the future for those living with sickle cell disease.

#throughthegenes #sicklecell #genetherapy #patientadvocacy #sicklecellwarriors #patientexperience #healthpodcast #transformativetherapy #healthcare #experimentaltherapies #geneticdisorder

In this episode of Through the Genes, we had Pediatric Hematologist-Oncologist, Dr. Mark Walters with us. The hosts discussed the topic, The Journey to Transformative Therapy - Maintaining Eligibility.This is an episode for anyone who is interested in how a sickle cell patient maintain their health so they are a perfect candidate for cell and gene based therapies, so, if this is you, then this is the episode for you.If you enjoyed this episode, go ahead to like and share with someone and if you haven't subscribed, you should do that now.

In this episode of Through the Genes, hosts Wunmi Bakare, Dima Hendricks, and Christelle

Salomon engage in a heartfelt discussion about their personal journeys with sickle cell disease

and the transformative therapies they have explored. They share their motivations for seeking

experimental treatments, the emotional and physical challenges they faced, and the importance

of mental health and self-care. The conversation highlights the resilience of sickle cell warriors

and the impact of their experiences on their identities. The episode concludes with a

light-hearted quick-fire round, reinforcing the bond among the speakers and their commitment to

patient advocacy.

In this episode of Through the Genes, host Wunmi Bakare engages with guests Seonni and Vanesha from the Mind the Gap podcast to discuss the complexities of visible and invisible disabilities, personal health journeys, and the importance of advocacy within the South Asian community. The conversation explores their experiences with health diagnoses, the impact of caregiving, and the cultural stigma surrounding health issues, particularly sickle cell disease. The guests share insights on the need for greater awareness and education, emphasizing the power of storytelling and personal narratives in fostering understanding and support.

Keywords

Keywords:

disabilities, health, identity, podcast, advocacy, South Asian community, sickle cell disease, mental health, personal growth, caregiving

Through the Genes Podcast | Bonus Episode: Curative Therapies Beyond the Borders

In this episode of #ThroughTheGenes, the hosts of the Let's Talk about Sickle Cell Podcast, Jenica Leah and Maya Bloomberg discuss the critical topic of sickle cell disease, focusing on advocacy, treatment options, and the disparities in healthcare systems between the UK and the USA. They share personal stories and insights into the challenges faced by sickle cell patients, including the high costs of treatment, the importance of mental health support, and the role of community in advocacy. The conversation highlights the need for education and awareness to improve patient outcomes and the power of collaboration among advocates to drive change.

#NHGRIxTTP #ThroughTheGenes #GeneTherapyPodcast #ThroughThePain #global #MedicalResearch #SickleCellGeneTherapy #SickleCellDisease #Letstalkaboutsicklecell #SickleCellTreatment #SickleCellResearch #ClinicalTrials #CRISPR #GeneEditing

In Season 2, we go deeper—confronting ethical dilemmas, highlighting critical clinical insights, and sharing unfiltered patient experiences that matter most to the sickle cell community. This season empowers warriors, caregivers, and providers with knowledge to navigate curative therapies with clarity and confidence. We also introduce our newest sickle sister, Christelle Salomon,

🧬 Featured Experts & Guests:

• Dr. Mark Walters

Supported by Beam Therapeutics, Synthego Corporation®, and Kamau Therapeutics, this series is a must-listen for anyone seeking hope, truth, and transformation in the fight against sickle cell.

💥 Mark your calendar – Season 2 premieres June 19. Let’s change the narrative, together.

#ThroughTheGenes #SickleCellAwareness #GeneTherapy #PatientVoices #HealthEquity #WorldSickleCellDay

In this episode of #ThroughTheGenes, we are joined by Kira Dineen, host of the award-winning podcast, DNA Today. Kira brings her expertise in genetics to the conversation as we explore the intersection of DNA, gene therapies, and sickle cell disease. Together, we discuss how science is advancing treatment options and how storytelling can amplify the voices of those affected by genetic conditions. Tune in for an engaging conversation that blends cutting-edge science with powerful personal narratives, shining a light on the future of gene-based therapies for sickle cell warriors.