IntellectAbility - https://replacingrisk.com/
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Twitter - @ReplacingRisk
Dr. Craig Escudé, MD is a Board-certified Fellow of the American Academy of Family Physicians and the American Academy of Developmental Medicine. He has over 20 years of clinical experience providing healthcare for people with Intellectual and Developmental disabilities and is the author of “Clinical Pearls in IDD Healthcare” (https://amzn.to/3CbeCDp) and “The Curriculum in IDD Healthcare” (https://replacingrisk.com/store/). Dr. Escude assumed the role of President of IntellectAbility in 2018.
We address the importance of educating healthcare providers. Specifically, what (and how) you can do as family members, loved ones, and supporters of those with Intellectual and/or Developmental Disabilities (IDD). Craig explains physicians are not trained to work with patients who have IDD. He shares his personal experiences and highlights what needs to change.
We touch on abuse and neglect. As parents we'll often have a feeling something is off - we shouldn't be quick to disregard it. Medication may be necessary, but shouldn't be the immediate go-to when something suddenly changes. What environmental factors could be affecting the individual? Craig gives us concrete examples of what to look for.
Helping your child live "independently" doesn't mean you have to stop advocating for them. Craig highlights the importance of having a "Health Passport". "Clinical Pearls in IDD Healthcare" has a version, or you can download this one from the Illinois Council on Developmental Disabilities (https://static1.squarespace.com/static/5cf7d27396d7760001307a44/t/5e9e1347fc832d0a6864a162/1587417930926/BetterCommunication.Health-Resume.pdf). Found on the American Academy of Developmental Medicine and Dentistry.
Resources mentioned during the interview:
- American Academy of Developmental Medicine and Dentistry - https://www.aadmd.org/
- Developmental Disabilities Nurses Association - https://ddna.org/
-Friends for Life podcast (Medical Mondays) - https://friendsforliferc.com/podcast/
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