Endometriosis will be the main topic of discussion for this episode as Rebecca talks to me about her condition and the 10 year wait for a diagnosis! Rebecca tells her brave story of having to advocate for herself over and over until being eventually diagnosed with Endo in July 2023. We also discuss our mutual love of dogs as well as Rebecca's media work, having her story shared across multiple news outlets, including Endo UK and The Mirror.
Follow Rebecca on Instagram @rebeccas.journey_ Follow this podcast @toms_hirschsprungs_podcast

A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career.
We start Zoe's story talking about her HD diagnosis, and how a medical error left her with far more complications than necessary. The conversation also moves on to how important her mother Cheryl has been in supporting her acting career as well as hospital visits.
Zoe talks about her already glistening acting and YouTube career as we discuss the star studded casts that she's worked with including Selena Gomez, Mark Wahlberg and Cameron Diaz.
Please enjoy the episode.
Follow Zoe on IG - @zoecolletti on YouTube - ZoeTube

For this weeks episode I talk to the 'Hirschsprung's Aware Bears' founder Lori, who chats to me about her experiences with her daughter Alexis, who has Hirschsprung's disease.
We discuss Alexis's diagnosis and how far medical advancements have evolved since 1986, we talk through her journey from the difficult early days to her life as a happy, successful mother of 3.
In the second half of the episode we discuss the formation of Hirschsprung's Aware Bears, how and why it was formed and how Lori helps people from all over the world
Follow Lori on Facebook - Hirschsprung's Aware Bears
Follow us on Instagram and Facebook - Tom's Hirschsprung's Podcast

As Tom's Hirschsprung's Podcast reaches the big 3 0, I have my first ever returning guest as Laura O'Reilly joins me once again with her coach Dan from AAO.
In this episode we will discuss the recent Tough Mudder that both Laura and Dan completed, as well as Dan's journey from diagnosis of Crohn's disease in the army, to how he developed his thriving online fitness business.
Laura talks about what fitness means to her and how it has shaped her life in the last 18 months, as well as what she would like to achieve in the future.
A lovely chat with two wonderful people who have become an inspiration for many!
Please enjoy the episode! Follow Laura on Instagram @laura.ibd.fitness Follow Dan on Instagram @aao.crohns

This week I chat with Hirschsprung's awareness month founder Stef Little, Stef also created 'Kicking Hirschsprung's Disease In The Ass' Facebook page that now has around 3000 followers. As well as being an entrepreneur, Stef and her daughter Sam also have Hirschsprung's disease and we talk about how all of this came to be. Stef's has not let her 146 surgeries hold her back as we talk about her and Sam's sporting careers, including Sam's hopes of making the 2028 Olympics as a swimmer. Follow Stef @steffy_little on Instagram Follow @toms_hirschsprungs_podcast on Instagram

A very special episode of Tom's Hirschsprung's podcast as Emmerdale and Hotel Portofino star Louis Healy joins us to talk about being diagnosed with Hirschsprung's disease as well as his incredible acting career. Louis talks about the fantastic care that he received at Alder Hey hospital, where his mum, Denise Welch, is now a patron. We also delve into his phenomenal stage and screen career to date, and Louis gives us a fascinating insight into his preparation and execution of his various acting roles. Thank you so much to Louis and his team for helping to organise this amazing episode. Please enjoy the podcast.
Follow Louis on Instagram @healytymd Follow Tom's Hirschsprung's Podcast @Toms_hirschsprungs_podcast

Episode 27 - With Nicky Kilpatrick @nickykilpatrickcoach - Out Thursday 11th July
This Thursday sees the interview of wellness coach and host of the Bowel Chronicles podcast - Nicky Kilpatrick.
We start Nicky's story around 2015, when she was preparing for a holiday - 24 hours later Nicky was in hospital, being diagnosed with an extra large bowel!- otherwise known as Megacolon.
Nicky talks candidly about her condition, as well as her life helping others with bowel conditions, via her job as a Wellness Coach and Mentor.
Follow Nicky on Instagram - @nickykilpatrickcoach
Facebook - Nicky Kilpatrick-Coach
Follow The Bowel Chronicles - on Spotify, Apple Podcasts and Youtube
#thebowelchronicles #hirschprungsdisease #hirschsprung #hirschprungsdiseaseawareness #wellness #wellnesscoach #wellnesscoaching #bowel #stomapositivity #healthjourney #bowelhealth #ostomy #ostomyawareness #healthstories

My guest this week, Loren, comes from Germany as I continue to scour the world looking for incredible Hirschsprung's related journey's - and this one was a real surprise!! We talk about Loren's story with the unusual twist that she was diagnosed with Hirschsprung's disease twice!! Loren is incredibly open about her diagnosis and shares her unique insight into her life with HD, whilst also wanting to help as many people as possible who are going through something similar.

To mark a quarter century of episodes I interview the host of the Chronic Convos podcast, Ashley Yodkovik, about her life as a chronic health advocate with 10 autoimmune conditions.
Ashley was diagnosed with Crohn's disease fairly recently, but is determined to become an incredible advocate for chronic conditions, through her experiences with her own conditions as well as job as a healthcare worker.
Join us for plenty of upbeat conversation about our conditions as well as some funny stories - including how Ashley came up with the Instagram handle @chronicallygimperella
Follow Ashley @chronicallygimperella Listen to Chronic Convos @chronic.convos

Vicky joins me to talk about her extraordinary fitness journey and how being diagnosed with Ulcerative Colitis in 2021 did not stop her from achieving her goals! We start the story with Vicky trying to find out everything she can about UC after her diagnosis, as well as taking inspiration from a previous THP guest @Laura.ibd.fitness . With the help of Dan @aao.crohns Vicky has been documenting her own exercise story, in the hopes of bringing positivity and supporting each other.
Follow Vicky - @meandthebigbadibd Listen to each episode on @Spotify