Tourette's Podcast

On this episode, a thoroughly good-vibe conversation with Raven, aka @poecrastinator on the socials. The conversation covers stigma, ticcing openly without disclosure, developing coprolalia and much more. Plus: A parent wants some ideas for activities his son can take up that might help him live with Tourette.

https://www.youtube.com/@poecrastinator

https://www.instagram.com/poecrastinator/

TAA resouce directory

A very special episode today with guest Bianca Saez and guest host Kass @ticsntatts, two adult women with Tourette sharing raw experiences. Both from Australia, the voices you hear today are well-known in the community -- Kass for her many angles on neurodiversity awareness on social media, and Bianca for her popular YouTube channel and appearances on television highlighting the dynamicism of her Tourette. Guided by Kass, Bianca shares powerful stories and perspective on what it means to have Tourette. Content warning: Brief but significant mentions of suicide and rape; some uncensored, casual language (Tourette's Podcast never censors coprolalia).

Bianca Saez on YouTube

World's most severe Tourette's case doesn't want a cure | 60 Minutes Australia

Kass @ticsntatts on Instagram

Kass on TikTok

https://tourette.org/resource/understanding-coprolalia/

https://tourette.org/

Stephen DiJoseph of Pennsylvania is a lifelong musician whose work connects art and Tourette Syndrome and came to the podcast's attention by way of a short film he made expressing just that -- in a really effective way. It's an art film, but comes off relatable to people with Tourettic brains, and this episode -- exploring Tourette, OCD and so on through music and expression -- flows in that spirit. DiJoseph has a concert coming right up that people can stream online Nov. 11. See below.

Watch - A SynapTic Adventure: Tourettes and Beyond

We welcome back to the podcast Amanda Talty, president and CEO of the Tourette Association of America. We talk about what TAA has been up to, the upcoming TAA gala (Nov. 10 in NYC), science and research, and more. Don't miss this one! Plus: A question from a parent about a situation at school.

Tourette Gala, Nov. 10 in NYC

TAA's YouTube

Update on wearable devices for Tourette

Amanda's bio

Dan was diagnosed in the 90s, when he was in first grade, forcing him to navigate Tourette when there wasn't much easy access to community. How could he explain it? Did he need to? Could he just get by with masking? Familiar questions-to-self for many with tic disorders like Tourette. Plus: A dad explains Tourette to his 5-year-old.

Tourette Gala, Nov. 10 in NYC

Our guest is Erick, a trans man and lifelong Touretter who, in navigating outsider judgments, became his own boss, found success with it, and realized that you "can't waste your energy anymore worrying about the people who try and deny who you are or what you have," as he put it. The discussion covers self-acceptance, co-occuring conditions like OCD, working in one's own, best way, and the difference between group advocacy success and exhausting, individual battles.

Tourette Gala, Nov. 10 in NYC

We talk with the eloquent Tom White, who works in the space of startups, in a great conversation covering pursuit of intellectual curiosities and how to keep momentum through often serious challenges. Plus, listener questions: 1) How do Touretters get used to ticcing in public?; and 2) When is Billie Eilish going to be on the show?

Tourette Gala, Nov. 10 in NYC

https://www.tomwhitenoise.com/

We start this week with some breaking news from the Tourette Association of America: a Tourette Syndrome research study from the CDC has just landed, and it concludes that the prevalence numbers for Tourette Syndrome and persistent tic disorders are double what we previously thought. One in 50 school-age children has Tourette or a persistent tic disorder. Read more.

Our conversation this week is with superb guest host Jhonelle and an excellent guest Touretter named Shawna -- the two of them met at the Tourette Association of America's recent annual conference in Minneapolis, Minnesota, and continue to get to know one another here, with all levels of relatability. The hard times, the upsides, everything real.

And a listener question -- can Tourette positivity go too far?

Peter Zhao -- you might know him as the great Fabulously Tourette -- takes the hosting helm for this episode featuring high school-aged guest Slayton, who has been managing Tourette in his life for about four years so far. Ben kicks us off with some quick Q&A about adults with Tourette before making way for the fantastic conversation that Peter and Slayton are able to create, with points about coprolalia, medications and side effects, bullying, creativity and more.

Fabulously Tourette Radio

My Crazy Brain (Slayton's podcast)

https://tourette.org/about-tourette/overview/living-tourette-syndrome/adults/

https://tourette.org/support-adults-ts/

Let's head to New Zealand, specifically Dunedin, home to a legendary music scene whose latest name, Mads Harrop, is our fantastic guest this week. Mads' experience with Tourette Syndrome, autism and anxiety directly informs and shapes her music, which has a great early-90s quality and lyrics you'll know how to follow. Mads just released a new EP, "My Chemical Fix," easily locatable through Bandcamp, iTunes, Spotify and the like. Her thoughts on the brain, healing through music, and how she deals in public spaces are among points on this episode.

Mads Harrop on Bandcamp

Tourette's Association of New Zealand