Welcome to Syngap Stories, a podcast dedicated to stories from the Syngap community about living with a rare, untreatable genetic disorder.

What is SYNGAP1:  https://www.syngapresearchfund.org/home/what-is-syngap1

Syngap Research Fund:  https://www.syngapresearchfund.org/

Follow Ashley:  

 Facebook:  https://www.facebook.com/ashley.hewettfrye

 LinkedIn:  https://www.linkedin.com/in/ashley-frye-62095582/

Connect with SRF:  

 Facebook:  https://www.facebook.com/cureSYNGAP1

 Twitter:  https://twitter.com/intent/user?screen_name=cureSYNGAP1

 Instagram:  https://www.instagram.com/curesyngap1/

 LinkedIn:  https://www.linkedin.com/company/18940628/admin/

 TikTok:  https://www.tiktok.com/@curesyngap1

 SYNGAP10 Weekly Video Podcast with Mike:  https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR

Wednesday Zoom Meeting for Syngap Families:

Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417

Comments and suggestions:  [email protected]

Music:  In the Forest... by Lesfm from Pixabay  

Episode 000 SynGAP Stories, January 22, 2023

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology