Treatment - The Bloodline with Blood Cancer United Podcast

Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then later diagnosed with acute myeloid leukemia (AML) in his brain in 2021. This incredibly rare second diagnosis changed the course of John’s treatment and thankfully led to him achieving a complete remission after a stem cell transplant.

As a young adult professional, John was at the heart of his career at the time of his diagnosis and felt the pressure to return to normal, which meant returning to work quickly. He shares advice with other young adult cancer patients to slow down and enjoy life, while also listening to your body and advocating for yourself.

Mentioned on this episode: 

• Chronic Myeloid Leukemia
• Acute Myeloid Leukemia
• Stem Cell Transplant
• Tyrosine Kinase Inhibitors (TKIs)
• Be The Match – Bone Marrow Donor Registry
• Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode
• Tips about Talking to Your Employer 
• Light The Night event

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

The post A Young Adult’s Journey Through Two Leukemia Diagnoses first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about the latest treatment advances for myelodysplastic syndromes (MDS). In honor of MDS Awareness Day on October 25th, the doctors discuss how MDS develops, why genetic mutations matter when choosing a treatment course, and how stem cell transplantation, targeted treatments and cellular therapies bring hope to MDS patients and their families.

Mentioned on this episode: 

• Myelodysplastic syndromes
• Acute Myeloid Leukemia
• Transplant Support and Graft-Versus-Host-Disease (GVHD) episode
• Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS)
• Transplant Optimization Program (TOP)
• MyeloMATCH initiative
• CAR T-cell Therapy
• Stem Cell Transplant
• Cellular Therapies
• Graft-Vs-Host Disease
• Be The Match – Bone Marrow Donor Registry

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Young Adult Resources
• Survivorship Workbook
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

Don’t miss this story of a patient who refuses to let cancer define his life.  

Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected with the LLS Clinical Trial Support Center, sought out a second opinion and ended up with a specialist in a nearby cancer center. He received a stem cell transplant in February 2020, right before the world shut down due to COVID.  

Now, two years after his transplant, Bruce stays active in the LLS Community and has received support from the Patti Robinson Kauffman First Connection® program.

Mentioned on this episode: 

• Mantle Cell Lymphoma
• Mantle Cell Lymphoma (MCL) Part One: Treatment Advances episode
• Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy episode
• Stem Cell Transplant
• Non-Hodgkin Lymphoma
• COVID Information
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Co., Inc.

The post Cancer Doesn’t Define My Life: A Non-Hodgkin Lymphoma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Dr. Shernan Holtan and guest co-host from LLS, Christina Neilsen. In this episode, Dr. Holtan discusses stem cell transplants; how they work, the different types of transplants, and the side effects, including graft-vs-host disease (GVHD).

Dr. Holtan shares exciting new research on reducing GVHD and provides blood cancer patients with hope as transplantations continue to improve and bring about potential cures.

Mentioned on this episode: 

• Stem Cell Transplant
• Allogeneic Stem Cell Transplant
• Autologous Stem Cell Transplant
• Graft-verses-Host Disease Fact Sheet
• CAR T-cell Therapy
• Clinical Trial Support Center
• Hope Lodge
• Posttransplant Cyclophosphamide
• Be The Match

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

The post Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine.  In this episode, Dr. Pollyea discusses the group of diseases that make up Myelodysplastic Syndromes (MDS) and how their variability leads to different treatments and prognoses, from active monitoring to chemotherapy and/or stem cell transplantation.  He shares his excitement about new treatment advances and is looking forward to an era of innovative targeted treatments for MDS.

Mentioned on this episode: 

• Myelodysplastic Syndromes (MDS)
• Myelodysplastic Syndromes (MDS) Booklets
• Acute Myeloid Leukemia (AML)
• Stem Cell Transplant
• IPSS-R Scoring System
• IPSS-M Scoring System
• Clinical Trial Support Center

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by Taiho Oncology.

The post Myelodysplastic Syndromes (MDS): A Group of Diseases first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and the present, while living their lives to the fullest.

Mentioned on this episode: 

• Chronic Myelomonocytic Leukemia (CMML)
• CMML Fact Sheet
• Stem Cell Transplant
• Myelodysplastic Syndromes (MDS)
• Myeloproliferative Neoplasms (MPNs)
• Mental Health Resources
• LLS Community 
• CMML Friends on Facebook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by Taiho Oncology.

The post Support and Stability: Living with CMML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the development and utilization of CAR T-cell therapy for MCL. Approved in July of 2020 for relapsed or refractory MCL, CAR T-cell therapy has shown incredible promise and is already giving hope to patients and doctors as a potential cure.

Be sure to tune into Part 1, where Dr. Lampson discussed the current treatments and latest advances for MCL.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; KITE, a Gilead Company and Novartis Pharmaceuticals Corporation.

The post Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the latest treatment advances for MCL. With more treatments available than just a few years ago, Dr. Lampson shares how his conversations with his patients have changed, providing more hope after a diagnosis of MCL.

Be sure to tune into Part 2 launching on May 23, 2022, where Dr. Lampson will focus on the exciting possibilities of CAR T-cell therapy for MCL.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by Eli Lilly & Company.

The post Mantle Cell Lymphoma (MCL) Part One: Treatment Advances first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that therapy would provide for him and his family. In honor of Mental Health Awareness Month in May, we share his story of resilience, highlighting the importance of mental health care for cancer patients and their families. 

Mentioned on this episode: 

• Multiple Myeloma
• Stem Cell Transplant
• Autologous Stem Cell Transplant
• Parenting Resources
• Mental Health Resources
• Additional Mental Health and Crisis Resources
• Survivorship Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by Genentech, Inc & Biogen; GlaxoSmithKline; and Janssen Oncology.

The post Mental Health and Myeloma: A Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current and emerging cellular therapies for acute leukemias. These innovative therapies include CAR T-cell therapy, modified Natural Killer (NK) cells and stem cell transplantations. In this episode, we discuss how these groundbreaking therapies have changed the landscape of treatment for acute leukemias. The doctors share what they are excited about in the future, citing how clinical trials are advancing therapies and how cancer centers can better serve the unique needs of adolescent and young adults (AYAs) with acute leukemias by utilizing a holistic and comprehensive approach.

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia
• Acute Myeloid Leukemia
• CAR T-cell Therapy
• Stem Cell Transplant
• Cellular Therapies
• Minimal/Measurable Residual Disease (MRD)
• Graft-Vs-Host Disease
• Adolescent and Young Adult (AYA) Oncology Program at University of Chicago
• CALMM Clinic at University of Chicago
• Young Adult Resources
• Survivorship Workbook
• Between Two Kingdoms

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Innovative Therapies for Acute Leukemias first appeared on The Bloodline with Blood Cancer United Podcast.