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TSC Talks!
TSC Talks! episodes
- THE SPED SPIN: Episode 1, An inside look at Special Ed in WRSD with Stacey Jackson, Mom/Advocate/9yr. School Committee MemberIn the first episode of this new podcast, I discuss special education with past school committee member and experienced special needs mother, Stacey Jackson. We go in-depth on Stacey's hands-on experience advocating for her daughter, from early intervention to high school and beyond, her experience with mediation, working with your child's IEP team collaboratively for a successful inclusion as well as alternative placements. Stacey also provides us with an inside look at the often misunderstood budget for all education, including special education; limitations as well as successes within a rather large regional school district and how working to find solutions t is not only helpful for all involved but cost-effective. Check out "Notes" @tsctalks on FB for detailed questions and answers and information discussed!57 min
- TSC TALKS Episode 18, Claire Despres, Shared Living Provider for MaryEllen Lacy, young adult with TSCA day in the life of Shared Living Provider, Claire Despres. We discuss the ins and outs of shared living; the program itself, the process of finding a client, the role of a good case management team, and then we get a glimpse at a day in the life of her client, MaryEllen Lacy. MaryEllen is a young adult living with TSC who has been on the podcast herself.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.33 min - TSC TALKS, Episode 17; Going Local! Finding the Middle Ground in Special Education with Stacey JacksonIn this episode, I go local in this discussion of special education with past school committee member and experienced special needs mother, Stacey Jackson. We go in-depth on Stacey's hands-on experience advocating for her daughter, from early intervention to high school and beyond, her experience with mediation, working with your child's IEP team collaboratively for a successful inclusion as well as alternative placements. Stacey also provides us with an inside look at the often misunderstood budget for all education, including special ed. The limitations as well as successes within a rather large regional school district and how working to find solutions that is not only helpful for all involved but cost-effective. Check out https://tsctalks.com and @tsctalks on FB for detailed questions and answers and information discussed!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.58 min - TSC TALKS. Episode 16; Hope WINS! Meghan Wilson, Cameran & TeamCamBamHOPE WINS. In the words of new TSC Mom Meghan Wilson, "Live the Moments". Meghan talks about her baby Cameran's diagnosis at 2 months, getting seizure control, ketogenic diet, the MGH TS Clinic, and family support with TeamCamBam. #TeamCamBam was made up of multiple family members all running for Cameran, and TS Alliance as part of TeamTSC , in the recent Marine Corp Marathon! Team Cam Bam raised over $30K for TS Alliance!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.31 min - TSC TALKS: Episode 15, Jill Talks: Team TSC and the big RACE! with guest host, Dorina LesliePrevious podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS Alliance, Team TSC as well as origins of TSC Talks podcast, development and motivations.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.30 min - TSC Talks: Episode 14, Kristina, Occupational Therapist, "The Importance of Hope in Early Intervention Services"Kristina Hansson, Occupational Therapist of 25 years discusses her motivation for becoming an OT, Importance of Early Intervention programs, the process of requesting services, her diagnosis of Neurofibromatosis, and much more!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.21 min - TSC TALKS: Episode 13, Mary Comeau - There's Always Hope!TSC Mom, Mary Comeau shares her nail-biter of an experience with TSC. From potential TSC diagnosis at 20 wks pregnancy, the start of seizures, difficulty with seizure control, keto diet, brain surgery, Early Intervention, Special Ed Teachers, and some success with CBD Oil treatment with TS Clinic at MGH, Boston, MA
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.32 min - TSC TALKS: : Episode 12, Adriana Piltz & Nicky's Garden of HopeA conversation about Adriana's experience with her son Nicky who is 20 and severely affected by TSC and the incredible project she's started called Nicky’s Gardens of Hope. "The pilot project will build our first facility, one that can truly help families with children and adults like Nicky. We will build a permanent home that gives their loved ones peace of mind that their children will be taken care of, even after they are gone"
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.1 hr 3 min - TSC TALKS: Episode 11: Woody Seagren, Role of a School Psychologist re: TSCWoody and I discuss his background and experience, the role of a school psychologist, how parents/students affected by TSC can best make use of services of a school psychologist, the use of labels, advocates, working as a team.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.41 min - TSC TALKS Episode 10 TSC Mom Renée -A Canadian Perspective w/non verbal son.Renée and I go in depth into her journey with her son Aaden who is non-verbal with TSC, diagnosis to current day. Renée gives perspective from Canada on managing TSC, from diagnosis, brain surgery to current day.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.1 hr 12 min
About TSC Talks!
From the publisher's feed
TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid"…
alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.
Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.