Freya Steindl has been on TPN since she was a baby – and it hasn't stopped her running half marathons, rock climbing or road-tripping across the US-Canada border for the Eras Tour.

In this episode of Tubie Talks: Hooked Up, Steph chats with the 24-year-old paediatric nurse from Brisbane about growing up not wanting to be "the sick kid", working alongside colleagues who just get it, and what it's really like to not eat orally at all.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Freya on Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Missed prom, met her people online, and came off every tube she had.

In this episode of Tubie Talks: Hooked Up, Steph sits down with 21-year-old Lilly Downs to talk life after a COVID diagnosis turned everything upside down. They cover feeding tubes in high school, finding friendship through illness, dating with medical baggage, and waking up one morning to a video with a million views.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Lilly on TikTok and Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Misbehaving feeding tubes, changing bodies and moving cities to breathe.

In this episode of Tubie Talks: Hooked Up, Steph sits down with disability advocate Amelia Tang to talk ME/CFS, mast cell disease, Cushing syndrome, body image, dating within the disability community and what social isolation really does to a natural extrovert.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Amelia on Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and disordered eating.

Besties, feeding tubes, hospital drama and a bit of rule-breaking.

In the first episode of Tubie Talks: Hooked Up, Steph sits down with her friend Coady Gillis to talk friendship, chronic illness, self-advocacy and the people who show up when things get hard.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. 

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Steph Kelly is your host for season two of Tubie Talks: Hooked Up. She's about to hook you up with a cast of people who, like her, are living life – working, playing, travelling, dating and doing it all – with chronic illness, disability and feeding tubes.

Tune in for weekly episodes from July 1.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. 

She's got a G-tube, J-tube, TPN and half a million social media followers. Meet Steph Kelly,  a Sydney nurse who's built a colossal community by candidly sharing what it's like to live with feeding tubes, frequent hospital stays and a lengthy list of conditions – including hyper-mobile Ehlers Danlos syndrome, POTS, and serious heart issues – all while leading a full, and often very fun life.

Come behind the scenes of Steph’s viral posts as I spend a morning with this incredible advocate. And that's a wrap for season one of Tubie Talks! 
 
You can read an interview with Steph in Issue Three of THE BLEND magazine: theblendmag.com/issue-2-1-1

Follow Steph's TikTok account here: tiktok.com/@stephkkelly

Follow Steph's instagram account here: instagram.com/stephkkelly

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

This is a story about a girl called Riley. One of four sisters who, along with mum, Grecian, and dad, Justin, enjoys drawing, outdoor adventures and ice-cream treats in her sunny home of Perth, tube-feeding all the way.

Join me as I chat with this charming six-year-old and her family, along with her school principal, who has personally mastered the art of schooltime tube-feeds, and her new support worker, who also happens to have a feeding tube.

You can read an interview with Grecian in Issue Three of THE BLEND magazine: theblendmag.com/issue-2-1-1

Follow Grecian’s instagram account here: instagram.com/growing_our_tribe

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

She blends up cheese platters with wine, pours espressos down her feeding-tube and calls Spotlight "the mothership".  Meet Kym Adams, a Brisbane local with a wicked sense of humour and, as her friend Skubi puts it, "mad crafting skills".

In this episode, Kym and I spend a day at the Wholesome Blends office (is that a cameo from founder Sarah Thomas, we hear?) and chat about how she found her way back to a full and fun life after her cancer treatment resulted in the need for a feeding tube.     

Find the cookbook that Kym helped put together, Sarah Thomas’ Blended: wholesomeblends.com.au/products/blended-sharing-recipes-for-love-stories-for-life

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

Let’s visit Sydney’s sunny suburb of Gymea and spend a day with a charming almost-three-year-old and his family, shall we? Luke Joseph has been tube-feeding since the day he was born and while he kept his parents, Eliana and Michael, and many medical professionals guessing for 16 months, a super-rare genetic condition turned out to be why.

In this episode I encounter a dreamy tube-feeding supplies storage system (watch out Marie Kondo), a grandparent who has learned how to tube-feed (hi Kerry!) and an early learning centre where the educators are tube-feeding experts. You’ve gotta hear this to believe it.

Follow Luke’s mum, Eliana on Instagram: instagram.com/thetubiemum, instagram.com/thehandmadebabyboutique

You can read an interview with Eliana in Issue Two of THE BLEND magazine: theblendmag.com/issue-2-1

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

He’s got the body of '80s-era Arnold Schwarzenegger, making him the polar opposite of what most people expect when they think of a tube-feeder. Meet Pedro Relvas, a former professional bodybuilder and personal trainer who faced enormous health challenges with a mindset as strong as his muscles.

Tag along as I chat with Pedro and his family at their gym and home in Brisbane. You’re gonna love this guy – and can follow his story @wolfpepe on Instagram and @pedrorelvas on TikTok.

You can read an interview with Pedro in Issue Two of THE BLEND magazine: theblendmag.com/issue-2-1

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com