Turner Syndrome, Talk and Tea

This is Katlin's experience of Turner Syndrome

Relationship with Turner Syndrome

[00:27]

The Biggest Challenge of Having Turner Syndrome

[01:15]

The Most Positive Experience of Having Turner Syndrome

[02:15]

What's Louise's involvement in the Society?

[05:30]

How has the Society helped Louise?

[03:30]

Most important message on Turner Syndrome?

[06:45]

Katlin's Instagram is

https://instagram.com/butterflybeauty1015?igshid=YmMyMTA2M2Y=

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Louise's experience of Turner Syndrome

Relationship with Turner Syndrome

[00:30]

The Biggest Challenge of Having Turner Syndrome

[02:00]

The Most Positive Experience of Having Turner Syndrome

[07:00]

What's Louise's involvement in the Society?

[08:20]

How has the Society helped Louise?

[10:20]

Most important message on Turner Syndrome?

[13:15]

Louise's Facebook is

https://www.facebook.com/louise.giles.79

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Nicole’s experience of Turner Syndrome

Relationship with Turner Syndrome

[00:40]

The Biggest Challenge of Having Turner Syndrome

[01:25]

The Most Positive Experience of Having Turner Syndrome

[02:20]

What's Nicole’s involvement in the Society?

[07:20]

How has the Society helped Nicole?

[06:00]

Most important message on Turner Syndrome?

[10:00]

I am taking part in a Study for Turner Syndrome.

"Hello there, I hope you don’t mind me private messaging this account.

My name is Tom & I am an MSc student in the UK conducting a piece of academic research on Turner Syndrome with the University of Hull.

We are currently in the process of recruiting those diagnosed with TS. We are hoping to publish this research which will help spread awareness for this disorder in the medical community & lead to more personalised treatment options for patients.

The study is completed online, using the participants’ personal desktop PC / laptop & they must be at least 18 years of age.

Furthermore, we are awarding participants that fully complete the study an £8.00 Amazon voucher to spend however they wish, in return for their time.

Please will you help us by circulating this poster? Participants are asked to email the address provided for further information.

Please note the study has been approved by the University of Hull Faculty of Health Sciences ethics committee.

Thomas Thompson"

Thomas's email is

Nicol’s Facebook is

https://www.facebook.com/jellybean4357

https://www.facebook.com/thebutterflychronicles/

Nicole’s Blog

https://www.thebutterflychronicles.net/

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

Link to order Nicole’s book

https://www.amazon.co.uk/Butterfly-Chronicles-Journey-Finding-Disorder/dp/1685564488/ref=sr_1_1?crid=1KB22SEM78PAU&keywords=the+butterfly+chronicles&qid=1652105643&sprefix=the+butterfly+ch%2Caps%2C63&sr=8-1

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Olivia's experience of Turner Syndrome

Relationship with Turner Syndrome

[00:30]

The Biggest Challenge of Having Turner Syndrome

[03:30]

The Most Positive Experience of Having Turner Syndrome

[07:10]

What's Olivia's involvement in the Society?

[15:20]

How has the Society helped Olivia?

[12:24]

Most important message on Turner Syndrome?

[16:40]

I am taking part in a Study for Turner Syndrome. 0

"Hello there, I hope you don’t mind me private messaging this account.

My name is Tom & I am an MSc student in the UK conducting a piece of academic research on Turner Syndrome with the University of Hull.

We are currently in the process of recruiting those diagnosed with TS. We are hoping to publish this research which will help spread awareness for this disorder in the medical community & lead to more personalised treatment options for patients.

The study is completed online, using the participants’ personal desktop PC / laptop & they must be at least 18 years of age.

Furthermore, we are awarding participants that fully complete the study an £8.00 Amazon voucher to spend however they wish, in return for their time.

Please will you help us by circulating this poster? Participants are asked to email the address provided for further information.

Please note the study has been approved by the University of Hull Faculty of Health Sciences ethics committee.

Thomas Thompson"

Thomas's email is

Olivia's Facebook is

https://www.facebook.com/profile.php?id=100048079120997

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Kelsey's experience of Turner Syndrome

Relationship with Turner Syndrome

[00:20]

The Biggest Challenge of Having Turner Syndrome

[01:20]

The Most Positive Experience of Having Turner Syndrome

[02:30]

What's Kelsey's involvement in the Society?

[06:10]

How has the Society helped Kelsey?

[03:50]

Most important message on Turner Syndrome?

[08:35]

I am taking part in a Study for Turner Syndrome.

"Hello there, I hope you don’t mind me private messaging this account.

My name is Tom & I am an MSc student in the UK conducting a piece of academic research on Turner Syndrome with the University of Hull.

We are currently in the process of recruiting those diagnosed with TS. We are hoping to publish this research which will help spread awareness for this disorder in the medical community & lead to more personalised treatment options for patients.

The study is completed online, using the participants’ personal desktop PC / laptop & they must be at least 18 years of age.

Furthermore, we are awarding participants that fully complete the study an £8.00 Amazon voucher to spend however they wish, in return for their time.

Please will you help us by circulating this poster? Participants are asked to email the address provided for further information.

Please note the study has been approved by the University of Hull Faculty of Health Sciences ethics committee.

Thomas Thompson"

Thomas's email is

Kelsey's Instagram is

https://instagram.com/kelsey.hannah1?igshid=YmMyMTA2M2Y=

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Gerard's experience of Turner Syndrome

Relationship with Turner Syndrome

[01:55]

The Biggest Challenge of Having Turner Syndrome

[04:40]

The Most Positive Experience of Having Turner Syndrome

[07:30]

What's Gerard's involvement in the Society?

[09:20]

How has the Society helped Gerard?

[12:50]

Most important message on Turner Syndrome?

[17:40]

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Molly's experience of Turner Syndrome

Relationship with Turner Syndrome

[01:00]

The Biggest Challenge of Having Turner Syndrome

[01:40]

The Most Positive Experience of Having Turner Syndrome

[03:20]

What's Molly's involvement in the Society?

[04:00]

How the Society helped Molly

[04:40]

Molly's instagram is

https://instagram.com/mollylouux?igshid=YmMyMTA2M2Y=

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Caroline's experience of Turner Syndrome

Relationship with Turner Syndrome

[00:29]

The Biggest Challenge of Having Turner Syndrome

[02:05]

The Most Positive Experience of Having Turner Syndrome

[05:40]

What's Caroline's involvement in the Society?

[08:00]

How the Society helped Caroline

[10:38]

Message for Women With Turner Syndrome

[28:35]

To win a Turner Syndrome, Talk and Tea Mug 😍

The giveaway is open worldwide.

Starting 03/04 and finishing on 09/04

Tag both my account and my podcast account in a story or post of you listening to any episode of this podcast to be entered.

Make sure you tag me so that I can see and add you to the draw.

I will be picking a winner from a hat at random on the 10th of April

Caroline's facebook is

https://www.facebook.com/caroline.marquis.5

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is the audio version of Maria interviewing me for her PHD related to Turner Syndrome

To win a Turner Syndrome, Talk and Tea Mug 😍

The giveaway is open worldwide.

Starting 03/04 and finishing on 09/04

Tag both my account and my podcast account in a story or post of you listening to any episode of this podcast to be entered.

Make sure you tag me so that I can see and add you to the draw.

I will be picking a winner from a hat at random on the 10th of April

Maria's publication

https://midiaticom.org/anais/index.php/seminario-midiatizacao-artigos/article/view/1306/1297

http://www.ciseco.org.br/index.php/edicao-8-2019/99-midiatizacao-da-saude-e-apropriacao-de-dispositivos-midiaticos-por-pacientes-o-caso-da-pagina-do-facebook-turner-syndrome-global-alliance

Maria's instagram

https://instagram.com/mariapfalchi?utm_medium=copy_link

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_linkn

My facebook is

https://www.facebook.com/EmilySeymour24

My personal facebook is

https://www.facebook.com/emily.seymour.18

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.

This is Rachel's experience of Turner Syndrome

Disclaimer: I am not a medical professional so if you need any advice or need to get something checked please consult your doctor or another medical profeshion

Relationship with Turner Syndrome

[00:50]

The Biggest Challenge of Having Turner Syndrome

[02:20]

The Most Positive Experience of Having Turner Syndrome

[06:20]

How the Society helped Rachel

[08:00]

Whats Rachel's involvement in the society?

[10:15]

Message for Women With Turner Syndrome

[12:20]

Rachel'a instagram is

https://instagram.com/rachbrown45?utm_medium=copy_link

My instagram is

https://instagram.com/turnersyndrometalkandtea?utm_medium=copy_link

My facebook is

https://www.facebook.com/EmilySeymour24

My twitter is

https://twitter.com/es_eymour?fbclid=IwAR2_PIoSVi47yeab3xnQFdPv0ae3NSEWwQahTHMIvloXbf_qetPOQPumQ1w

If you want to be a guest on my podcast then message me on any of my socials

Want to know more about Turner Syndrome? Go to https://tss.org.uk/ and get more information.